I am so sorry I haven't posted in a very long time... but I read your posts every day. I experience your ups, downs, sorrows and celebrations with you. My love, prayers and support for you all.. of all cultures and beliefs. 💕
This past year has been a HUGE chapter to our "PSc journey"... not due to doctor's, treatment or rising PSA #'s (thank God) but due to the horrors of insurance companies. OMG! Brian turned 65 last August. Went on Medicare A.... easy peasy. Lost his Teamsters insurance due to turning 65. He went on his current company's insurance and gave all Specialty Ins.,hometown pharmacy and doctors new insurance information. They kept sending his Zytiga through the original insurance company even though they verified it every time and we thought (naively) that they'd successfully moved to his new insurance. NOW we're dealing with a $35,000 bill for Zytiga... until the companies caught up in March 2019. Appeals, etc... Than in August 2019 went on Medicare. Issues from the get go, but tonight was the worst. His Medicare Part D company, "Cigna" denied preapproval for his Zytiga! What the heck? Does anyone have any words of wisdom to help in this dark time? They say it's not medically necessary and suggest he speak with his physician about treatment alternatives! He has Stage IV, T1, M1 PSc... aggressive... I've never been told castration resistant but I assume so. His pathology report showed 12 of 12 cores 5+4. We all know what that means. Why the heck would they NOT approve Zytiga? Any words of wisdom would be appreciated!
Love you all!
PS... That's him in the red shirt reflected in the window (original paint) of his '85 Mustang GT at the Woodward Dream Cruise last weekend. He worked 12 hours parking cars! (And dealing with bikes, skateboards, etc)