Taking the win...: Well after a weekend... - Advanced Prostate...

Advanced Prostate Cancer

21,007 members26,181 posts

Taking the win...

Mish80 profile image
30 Replies

Well after a weekend of anxiety and high emotional strain, dad saw his oncologist and three months post ADT and radiation treatment his PSA is down to 0.04 from 1.4. This is a win yeah ? Some breathing space anyway...

Written by
Mish80 profile image
Mish80
To view profiles and participate in discussions please or .
Read more about...
30 Replies
dockam profile image
dockam

Yay and congrats - it's always wonderful to see good results on this forum. Fight on

fritz1 profile image
fritz1

For sure worry less!

tom67inMA profile image
tom67inMA

Excellent PSA result, go celebrate with a happy dance!

fritz1 profile image
fritz1

I think you definitely must keep fighting, as you’ve so effectively done and so helpfully and generously described to all of us. Anybody who reads this forum is probably here because they want to fight their PCa or assist a dear friend or a loved one fight that person’s PCa. And you have been a great resource for many here in that regard, including me. Nonetheless, the title of

Mish80’s post, “Taking the win” is, I think, good advice for those of us who make progress, however temporary that may turn out to be, in arresting this disease. To me, we take those wins by making a conscious effort to go back to enjoying to the fullest extent possible the people and activities that made life worth living before we got smacked in the face by being diagnosed with PCa. Worry less

simply means try to think about and actively pursue those pre PCa pleasantries more. That’s sometimes hard to do. And it gets harder as the date of the next PSA test approaches. But I think we need to try and do that as best we can for our own sake and those dear to us. Remember their peace of mind and happiness is collaterally damaged by witnessing us distressed and depressed by our fight against PCa. I’ve certainly seen that in my own family. I’ve been smacked in the face by PCa twice now. Once when initially diagnosed in 2012, and then again when I got news of a recurrence last year after my RP in 2012. I’ve done my fair share of envisioning an agonizing death from this beast. But I’m PSA undetectable as of this moment and at least until late this month when I get my next PSA test. So I’m trying to live in this moment for me and my family (well except I still spent time posting this!!!—-lol). I’m not a technical guy Nal. The only advice I can offer to the many here from my experience with PCa is if you hear a bell go off in the fight against PCa (like falling or undetectable PSA test results), try to go to your corner and give the people and activities you love more attention, and the beast in the other corner a little less, even as you will everyday remind yourself that the bell can ring again to start the next round.

Pierreb profile image
Pierreb

Awesome News Mish80!!! So happy to hear these results! My Dad saw his MO today and similar good results. Sleep well tonight and keep fighting!!

It’s a win win ...now to keep it all going in the right direction . Great results ,stay diligent ,but celebrate good news .. Thanks !🥳👏

Bon Voyage Nal .👏. Enjoy ..

Patrick-Turner profile image
Patrick-Turner

Yes, breathing space, sure, but I had gleason 9 in 2009, Psa 6. Docs attempted RP in 2010 with Psa 8, but Pca at PG was inoperable so I got put on ADT 6mths, then had EBRT and after another 18mths on ADT Psa went low to 0.08. Then I quit the ADT and Psa went back to 8 within 6 months, so I have been on ADT since with a pile of other treatments and a huge expense that continues.

Fight is not over yet for me.

Not all men get the same stubborn Pca like mine. Some have survived 26 years after diagnosis, and 1 I know lasted only 3 years.

Pca often becomes a chronic disease that a man and his wife or other relatives have to live with, so somehow a lot of us learn how to just do this, and be grateful for what time is given to us.

I hope you do get a win, but Pca has a habit of giving a win, then Psa rises, and its a loss, so you have to chase treatment to get another win to get Psa low again. A man has to fight to get more time and an extended quality of life.

Patrick Turner.

curious-mind1 profile image
curious-mind1

This is a time for celebration! Wishing you, your dad and family long years of continued celebrations!

Arthur

Mish80 profile image
Mish80

We are all grateful for your support, kindness and knowledge on here.

Mish80 profile image
Mish80

Live :)

Mish80 profile image
Mish80

Thank you - likewise for you.

Bebby1 profile image
Bebby1

Sounds like a win

All the best

Breathe👍👍👍

larry_dammit profile image
larry_dammit

Great news 🙏🙏🙏

TEBozo profile image
TEBozo

Mish80, congratulations! Many of us are months away from a vacation hoping for a permanent one . I'm 14 months out and counting!!!!

greatjohn profile image
greatjohn

Enjoy the win/holiday!

monte1111 profile image
monte1111

Lower than mine. A definite win, win, win!

elvismlv123 profile image
elvismlv123

savor the moment and do something fun

gamemaster34 profile image
gamemaster34

Good news is always welcome!!!

j-o-h-n profile image
j-o-h-n

youtube.com/watch?v=0FmPg4l...

Good Win...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/02/2019 5:45 PM DST

j-o-h-n profile image
j-o-h-n

Thanks....I didn't know that..... but he's cool, rad and etc.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/02/2019 6:55 PM DST

Hirsch profile image
Hirsch

Will miss your presence

dmt1121 profile image
dmt1121

That is great news! However, stay ever vigilant. PSA often moves back up quickly, for those with a high post-primary surgical gleason score. You can have a short period to BCR and short doubling time. It is certainly good news but be patient and see whether the numbers stay low and for how long.

Good luck.

Mish80 profile image
Mish80 in reply to dmt1121

Thanks - yes that is the plan. We are under no delusions about the uncertainty of this disease, but I think it is equally important to take comfort in even small periods of stability. If we don’t enjoy the now and look too far ahead then this disease has already beaten us.

Tub111 profile image
Tub111

Congrats!!! Anything positive is a great pick me up!!

Sheri (cheerleader for you all now)

in reply to Tub111

🌹

Uh oh!

tallguy2 profile image
tallguy2

Definitely breathing space! Congratulations. Of course your father will be going steady with his urologist for life.

Mish80 profile image
Mish80 in reply to tallguy2

Oncologist and radiologist :) Urologist got the flick when he failed to act on biochemical recurrence.

tallguy2 profile image
tallguy2 in reply to Mish80

Excellent!

You may also like...

Lu-177 for the win!!

After receiving 3 treatments all known cancer mets have been resolved according to his Choline...

Afraid to take Xtandi

prostatectomy in 2004, 38 radiation treatments in 2010. Now his recent PSA is 3.0 and bone Mets in...

Vomiting after taking xtandi

Hi, dad was sick after taking his xtandi at the weekend. Has been ok since. Just wondered if anyone

Is it normal taking lupron shots and after awhile doesn’t work?

my husband, he had his prostate removed and after his first blood to test his psa , it wasn’t zero...

Xtandi, how long could it take to work?

for three months now after becoming castrate resistant to Firmagon. His Psa with Xtandi went down...