Diagnosed early March 2019, but pretty far along. 103 g prostrate - adenocarcinoma in 10 of 15 samples, all with Gleason 4+4 = 8, most samples show cancer at 60% - 100%. Metastasized to the retroperitoneal lymph nodes proven by biopsy. Strangely, the pelvic nodes seem normal. Last PSA 8.4, but none measured since started Lupron. Taking Lupron shots every 90 days (started 30 days ago) Plus just started Zytiga last week with prednisone. Radiation ruled out – nodes too extensive and too close to the aorta.
Current issues on my mind:
* Biopsy proved prostate cancer in retroperitoneal lymph nodes but according to imaging my pelvic lymph nodes are normal. Scans detect no cancer anywhere else. Per literature search It seems extremely rare to just metastasize to those distant node’s. Any insight on what’s going on?
* my prostate is huge and my urological symptoms are significant. Flomax helps, but still have all the UT problems. No doc favors removal saying it won’t do any good for the cancer. Any
thoughts on removal or TURP?
* Fatigue is the biggest side effect that I have been feeling, a lot. What do others do about this?
Anyway glad to join, looks like this is a good group.
T2c N1 M1a
(Extensive Growth to both lobes of prostate, metastasis to distant lymph nodes)