Proton beam therapy please help

[Bob10]

Hi did anybody try proton beam therapy. With Mets to lower their pas and did it help thanks sooo much

[Tall_Allen]

Will your insurance cover that? I know they cover SBRT for pain palliation.

[Bob10 in reply to Tall_Allen]

Ty. Tall not sure about insurance. Can u tell me a little about SBRT.

[Tall_Allen in reply to Bob10]

It's what is usually used to relieve pain from bone mets.

[Bob10 in reply to Tall_Allen]

Is it

use on the prostate also

[Tall_Allen in reply to Bob10]

I had it on my prostate, but I was not metastatic

[Bob10 in reply to Tall_Allen]

Some studies suggest that its work on low mets

[Tall_Allen in reply to Bob10]

STAMPEDE did on 3 or fewer - how many do you have?

[Bob10 in reply to Tall_Allen]

Iwill try to answer I have prostate cancer in my lungs and bones maybe 3or 4. plus lymph nodes but they are now normal

[Tall_Allen in reply to Bob10]

ANY visceral Mets means you won’t benefit from prostate organ treatment

[Bob10 in reply to Tall_Allen]

No

[Tall_Allen in reply to Bob10]

lung met= visceral met

[Bob10 in reply to Tall_Allen]

Sorry tall I didn't now what visceral was

[Stegosaurus37]

"You Can Beat prostate Cancer" by Robert J. Marckini is the story of a man who went through proton beam therapy. He wasn't metastatic and you can't go through the Loma Linda treatment if you are, but interesting book.

[Hidden]

I was going to spend all my money on it until I read a study that showed very similar results to other radiation. Brotherhood of the Balloon hyped it to no end. Some say it's a comparison of smart bomb vs. carpet bombing. I went with carpet bombing. 3mos. Lupron- 28 radiation treatments-3 mos. more Lupron resulting in a .8. Took 3mos. vacation from Lupron=36 PSA. On Eligard and feeling good. An acquaintance took same treatment at same facility = All good, no ADT, no nothing. It's a crapshoot.

[j-o-h-n]

Greetings Bob, Tell us more about yourself. Age? Location? Where you're being treated? and Doctor(s) name and any other specifics regarding your Pca. This will help in answering your future questions. The guys (and ladies) here are terrific.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/26/2019 9:49 PM EST

[Bob10]

Hi I'm 55yr with young daughters at 50 did a psa wife said its important had a 6.5 psa doctor said no big deal ..what a ass...had some urinary issue in Oct 2018 had A biopsy and psa ..psa 55 biopsy 11 core one 9 Gleason lots of 8. Started bicalutamide. For 3weeks psa then received lupron..doctors at Dana Farber said its important to do chemo. Psa was .9. Started chemotherapy 3 rounds of 6 psa in .3 just started up on bicalutamide a couple of days ago to see if we can get my psa down to below. .1 I'm thinking of radiation on the prostate to kill any psa ..the my provenge and zytiga