At the suggestion from Darryl, I have now joined this community. I have been part of a smaller group for Gay Men with PCA
First diagnosed 2005, age 45, Gleason 7, stage IV.
Treatment: Lupron 2 years, brachytherapy, 36 sessions of radiation.
Over the years as my PSA elevated I would be placed on Lupron for 1 year. I believe I have been on Lupron 6 out of 13 years.
Now, my situation has changed. My PSA is elevating very quickly, 2.3 to 13.4 in 6 months. I am now anti-androgen resistant. There is no evidence of metastis.
I am now seeing a radiation oncologist at Stanford. He wants to keep me on Lupron and put me on a new drug Erleada. I have read the data on this drug and the side effects. The drug's claim is to delay metastasis for an additional 24 months. Control group metastasis on average 16 months on Erleada 40 months.
I'm not a quitter, but looking at the data makes me wonder. What is the point of taking this med to only prolong the inevitable? I will be 59 next month, longevity runs in my family. I could literally be a cancer patient for another 30 years.
I am tired of doctors, tests and pharmaceuticals along with their side effects. Realistically I cannot envision myself as a cancer patient for the next 30 years.
I have no significant other, children or siblings.
I love life and enjoy it. I do not have a death wish. I just don't know if I can keep doing cancer treatments any longer. I am considering ceasing all treatment. It appears to me all treatments are there to extend one's life all still leading to metastatic cancer.
I would appreciate any input or pearls of wisdom anyone can share. Am I crazy? I hope not. I would rather have a high quality of life (even if shorter) than to be miserable under constant treatments.