Been offered Radiotherapy in the prim... - Advanced Prostate...

Advanced Prostate Cancer

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Been offered Radiotherapy in the primary tumour.

Apollo123 profile image
9 Replies

Hi all I’ve been having Zytiga/Pred and Zoladex for the past two years as my primary treatment. All is going well but my oncologist has just offered me Radiotherapy based on some new results based on a trial. I have distant mets to lymph nodes. I’m doing so well what can I expect from this new treatment? Is it a good idea to eradicate the tumour in the prostate and will it benefit me long term? Thanks all. Anthony 👍

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Apollo123 profile image
Apollo123
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Apollo123 profile image
Apollo123

The distant mets were picked up on the PET scan as micro mets around the chest. The only large nodes were pelvis and one in the chest. 👍

Tall_Allen profile image
Tall_Allen

Here is what the trial found:

pcnrv.blogspot.com/2018/09/...

As long as there were 3 or fewer metastases, "debulking" was of some benefit. If there were more, there is no benefit - only side effects.

Dalph87 profile image
Dalph87

Definitely go for debulking if you ask me (up to you if with surgery or radiation), it greatly helped my father and slowed down the disease by a lot (he has G7).

Best wishes.

paulofaus profile image
paulofaus

Hey Ant, before you make your decision have a think about getting a genetic test from your prostate tumors or tissue banking some of your prostate as it's too late once you get zapped. The tissue may come in handy down the track for certain treatment options. Cheers Paul.

Apollo123 profile image
Apollo123 in reply to paulofaus

Thanks Paul I will. 👍

EdBar profile image
EdBar

I had IMRT to my prostate and several nodes early on in my dx back in 2015 despite having numerous skeletal mets and mets to several nodes. As Nalakrats said I wanted to eliminate the mother ship and decrease the cancer load in my body. Less cancer means less opportunity for additional mets. It also helps to prevent the spread of cancer to nearby organs that are difficult to treat like the bladder and urinary tract.

Dr. Myers called it one of the most important things I did in the multidimensional treatment approach I took to deal with my G9 cancer. So far so good.

Ed

Apollo123 profile image
Apollo123 in reply to EdBar

Thanks Ed your response has really helped. 👍

Stegosaurus37 profile image
Stegosaurus37

Seems to make sense that if you eliminate the Death Star, the tie fighters will cause less of a problem. I brought this subject up with my urologist (who did a super whizzo job on my TURP), but she opined that such a surgery was out of her area of expertise and she wouldn't feel comfortable in doing it. That's OK; I would never ask anyone to get out of their comfort zone. So you may have to really root around to find somebody with the level of expertise who's willing to do it. Best of luck.

RGD115 profile image
RGD115

In December 2015 l had a PSA 6.1 6 months later it went up to 6:8 by May 2017 l was on 13.1 l wanted proton treatment but uk couldn’t do my Gleason 4+3 so l done my research on the proton clinic in Prague glad I did so far no regrets treatment was like a walk in the park also l didn’t say anything at the time but l noticed that one of my testicals was noticeably larger and very hard after my 5 fractions of proton treatment l returned home rested for 2 days and returned to work on the 3rd day one thing l remember was l mentioned that my consultant in uk said there were signs of something from the rectum to the testes told the professor in Prague he said if we treat your prostate and we find anything in the rectum area we will treat it and l must say l am very glad l didn’t take notice of my consultant to have radical surgery lwent to Prague to l so far l haven’t looked back also my testical has returned to normal and drastically smaller than it was prior to proton treatment and once again tender as it should be thank you prague and professor kubbs

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