Are any of you still drinking coffee? - Advanced Prostate...

Advanced Prostate Cancer

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Are any of you still drinking coffee?

HOPEFULSPOUSE profile image
51 Replies

My husband stopped drinking coffee in additional to many other dietary changes at diagnosis. But an article in the new Life Extension Magazine lists coffee as something that should be consumed daily.

Would love to hear what you all are doing / not doing in this regard.

Thank you so much!

lifeextension.com/Magazine/...

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HOPEFULSPOUSE profile image
HOPEFULSPOUSE
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51 Replies
pjoshea13 profile image
pjoshea13

Oh no!

Tell him to drink extra coffee to make up for his mistake!

This is what I posted 2 years ago:

healthunlocked.com/advanced...

-Patrick

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to pjoshea13

Excellent this is great - many thanks. Can't express my gratitude enough.

I would suggest not drinking coffee late in the day. It can cause you to miss a good nights sleep by needing to get up frequently to pee. Also, one comment concerning beef. True grass fed beef is loaded with omega-3 and just as healthy as cold water fish. It is the grain the animals are fed that is bad for us.

whatsinaname profile image
whatsinaname in reply to

Agreed on both the late coffee drinking and the grass fed beef.

in reply to

If I drink coffee past 5pm I won’t sleep well .

in reply to

Reason # 1 I don’t drink coffee because it bothers my already screwed up urology.

whatsinaname profile image
whatsinaname in reply to

How about trying a neat whiskey, Lulu700 ?? :-) A large Lagavulin, no rocks. Sip it slowly. Best enjoyed with fillet mignon (grass fed), medium rare.

Cheers, Lulu700 !!

in reply to whatsinaname

Now you’re speakin my language! What time s dinner?

whatsinaname profile image
whatsinaname in reply to

How about you turning up at 6pm ??

Then we settle down with some superb whiskey and some delicious snacks.

Next, steak with some great trimmings.

Finally, as Tall_Allen has assured us that "sugar" is not proven bad for MPC, I can offer you dollops of Haagen Dazs (lots of flavours) or caramel creme brulee or chocolate souffle. And, maybe a cognac ? With a Cuban cigar ?

Cheers, Lulu700 !!

in reply to whatsinaname

I’ll be there early ..With bells on Amigo..We need to Get some good days in whenever possible .. bananas foster w/ cappuccino , followed by a cohiba and some Louis tre.? Speedy recovery brother..

whatsinaname profile image
whatsinaname in reply to

lol, lol, lol.....hahahahahaha.....cheers, Lulu700.....enjoy life :-)

HOPEFULSPOUSE profile image
HOPEFULSPOUSE

Thank you - great info - great on the organic and distilled water which we do - am going to brew now! Much appreciated.

HOPEFULSPOUSE profile image
HOPEFULSPOUSE

For sure - thanks for the info about the grass fed beef - he keeps going back and forth about this - should he eat it or not. Very helpful, thank you.

Tall_Allen profile image
Tall_Allen

Stop googling random internet sites and throw away Life Extensions (which is in the business of getting you to buy unproven supplements (which are drugs)). Get information ONLY from real evidence.

There has never been a randomized clinical trial, but the best evidence so far is from a Mendelevian randomization study. They found there was no causal association between coffee intake and prostate cancer mortality among men with prostate cancer:

ncbi.nlm.nih.gov/pmc/articl...

A recent large European cohort study also found no association:

onlinelibrary.wiley.com/doi...

Based on the best evidence so far, there is no reason to limit coffee intake.

HOPEFULSPOUSE profile image
HOPEFULSPOUSE

Thank you for your reply which I assume is well intended (in spite of the beginning imperative which assumes facts not in evidence).

I'm on this site for support which I've received in abundance, with the exception of your post.

My husband's first doctor (an MD/PhD from Sloan) recommended Life Extension and we have subscribed ever since, we have even been fortunate to meet several MDs on their advisory board over the years - all of whom were quite impressive.

ewhite999 profile image
ewhite999 in reply to HOPEFULSPOUSE

I too am on this site for support which is what you’ll find the large majority of the time. Great bunch of folks. As with anything, you’ll come across some who will be a bit abrasive but in most cases unintentionally. Tall_Allen has offered great advice over the years but it is sometimes delivered with an edge.

Tall_Allen profile image
Tall_Allen in reply to HOPEFULSPOUSE

You wrote "But an article in the new Life Extension Magazine lists coffee as something that should be consumed daily." How is that "assuming facts not in evidence"? My post was probably the most supportive you got - I don't consider stoking your confirmation bias to be supportive.

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to Tall_Allen

Someone is jonesing for an argument, that someone is not me.

Will leave it at this: I find many of your posts informative and appreciate them.

Namaste.

I quit and don’t miss it. A cup once in awhile.. for me my digestion is better without ...

Ole’ coffee!

Chazem profile image
Chazem

This website is very supportive.

Please don't take offense as I doubt it is no meant to be offensive.

Yay for coffee !!

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to Chazem

Thank you!

I drink coffee everyday. I have zero dietary restrictions. Do yourself a favor and discuss dietary recommendations with your Medical Oncologist and your Cardiologist.

GD

Scruffybut1 profile image
Scruffybut1

I still drink around 6 large strong mugs daily. Plus minimum 5 pints of water. No I'll effects from either after 8 years PCa and my Consultant MedOnc says carry on as normal and don't worry about diet. Be happy she adds. And I am.

Redlog profile image
Redlog

I don't know if its good or bad for you but I am not giving up my coffee. It is one of life's little pleasures. I drink many cups a day. I am unaware of any negative side effects(at least in regards to my cancer).

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to Redlog

I'm so with you on that one! We are trying to remember why my husband gave it up in the beginning - and can't

Lyubov profile image
Lyubov in reply to HOPEFULSPOUSE

Hi, My husband gave up coffee because it is acidic. Post RRP (2014) he was advised to avoid acidic & spicy foods/drinks because they were/are deemed to be bladder irritants & would make him pee more. He gave up all coffee (uses that grain stuff for a morning cuppa) & all alcohol. I'm not sure he needs to be so scrupulous about it now, but it's in his nature to be scrupulous so I let it be. I will say it makes meal-preparation more challenging for me!

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to Lyubov

That is my husband as well. Once he receives advice and is convinced of the science, it takes quite a bit for him to abandon. But thankfully, he's back to having a cuppa and loving it.

leo2634 profile image
leo2634

I eat and drink anything I want. We are all on borrowed time anyway with or without PC so I enjoy everyday I'm still here. I think I'll make a lot of coffee now.

DeanNelson profile image
DeanNelson in reply to leo2634

Bam!!! I just made some sourdough bread and having some toast with an expresso!!

whatsinaname profile image
whatsinaname in reply to leo2634

I would advise : Skip a cup or two of coffee and have a large peg of whiskey with lunch or dinner :-) Seriously.

leo2634 profile image
leo2634 in reply to whatsinaname

I didn't mention I like my Dewars Scotch too !!!

tallguy2 profile image
tallguy2 in reply to leo2634

As I write this I am enjoying a lovely single malt scotch! (It's probably blasphemy but I did this during chemo, too!)

whatsinaname profile image
whatsinaname in reply to tallguy2

You drank WHISKEY during chemo ??? Maan, you are something else, tall :-)

My nursing staff and quacks would probably kick me out if I even suggested I drink during chemo.

Cheers, tallguy2 !! Enjoy life !!

paulparry profile image
paulparry

I think if on chemo then cut down as hydrating fluids are more important.

I would avoid caffeine after 6pm personally but not heard or read it has negative affects for PCa.

EchoII profile image
EchoII

I switched to decaf because cancer meds (ADT) were raising my blood pressure.

in reply to EchoII

Same for me. I was loving my afternoon triple shot latte and my blood pressure on ADT was way too high. Off the caffeine and BP is normal again.

larry_dammit profile image
larry_dammit

After chemo all I could get down was lemonade , and water. Slowly my taste buds came back and I am back to my 2 cups of coffee a day. My nutritionist said eat and drink anything you can stand as the cancer will make its own sugar . Don’t stop life ,enjoy what you like. Fight the good Fight

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to larry_dammit

Thank you - agree! And thanks for your positivity!

tallguy2 profile image
tallguy2 in reply to larry_dammit

I agree 110%. Thank you!

Litlerny profile image
Litlerny

I’m on the fence on this issue. I also get Life Extension magazine and use a couple of their supplements (Pomegranate and Milk Thistle), but I agree with Tall that Life Extension (et al) is not a bona fide source of medical evidence. They are a huge company in business to sell you herbals and other supplements, always with ague claims of the wonderful things they do followed by the disclaimer that what they sell you is not intended to diagnose or treat any illness. The problem with most supplements, including those sold by Life Extension and their team of doctors and researchers, is that there frequently is not enough evidence to support their claims, determine their efficacy, determine what dosages provide a positive benefit, determine side effects and drug interactions at an efficacious dosage, and evaluate the bioavailability of the supplements. You could literally be peeing your money down the toilet. So...Let the buyer beware.

On the other hand, I feel that we cannot rely solely on full blown clinical trials for everything we use. There just isn’t enough time, money, or researchers to allow for that, and the big pharma companies aren’t going to spend their research money and time on supplements that can be obtained cheaply over the counter. I have read several articles from what I feel are reliable sources, with at least some compelling anecdotal evidence that certain supplements and drugs have some positive benefits in causing apoptosis, or at least blocking the progression of cancer cells. Some may not do much on their own, but may work synergistically with our prescribed medications to improve their anti-cancer properties and length of time they will continue to work. Who knows? I don’t think that we can just totally and completely write them off and ignore the small (albeit not controlled) studies that show benefits of certain supplements.

It is incumbent upon the PCa patient to do his own research and, before starting any supplement, discuss the use of a given supplement with his medical oncologist at least to the point of making sure they won’t do any harm, even if the MO feels they may not help you. My MO knows about everything I take. And while he doesn’t always agree that they might be helpful (his favorite phrase is “that is controversial”), he also allows me to use them (maybe for the placebo effect, lol) because they won’t hurt me either, and just might help.

It remains an enigma, wrapped up in a mystery, boxed in a conundrum for those of us who are just trying to battle this insidious and formidable disease and stay alive. To that end, we shouldn’t be guided by desperation, but by knowledge.

Note that even this website contains a disclaimer that the content on HealthUnlocked does not replace the advice we get from our medical providers.

If you consider using any supplement, or using any other complementary or alternative treatment, don’t just rely on a couple of You Tube videos, some of which are totally bogus, but consider the source of the information, their motives, do your own research, and consult with your MO before buying or initiating their use.

There is no “my way or the highway.” We are all fallible to some degree, and there is still much that is unknown about the intricacies of cancer progression and resistance to the currently available drugs and treatments. Is there a magic bullet out there that will some day cure advanced PCa or at least make it a chronic condition? We can only hope and pray that they find it in our lifetimes. Like everyone else here, my thoughts and comments are not the gospel truth or even recommendations for any of you... just my own humble, non-medical feelings and observations.

Bless you all. Please remember that even if we sometimes disagree, we are all in this together. Keep it positive. Have a blessed and beautiful day! Whew!

Mark

Break60 profile image
Break60

I never was told coffee was a problem per se except that for PCa patients it could irritate their sensitive urinary tract during radiation.

jsmith2506 profile image
jsmith2506

You would have to kill me to get a mug of coffee out of my hand, so I think I'll take my chances with the prostate cancer...…It hasn't killed me yet......:))

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to jsmith2506

me too!

Borntopaint profile image
Borntopaint

We drink it all day.

HOPEFULSPOUSE profile image
HOPEFULSPOUSE in reply to Borntopaint

And in fact it's doing you good! We really missed the ball on this one. But better late than never!

tallguy2 profile image
tallguy2

I still enjoy 3 cups of coffee a day, and about that much in adult beverages, too. Not letting MPCa run my life.

in reply to tallguy2

Agreed, you can live in fear or live life. The beast will get you at some time so enjoy the simple pleasures while you can.

j-o-h-n profile image
j-o-h-n

Atención amigos y clientes.

Please drink all the coffee you can every day.

Gracias!

Juan Valdez.

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 11/19/2018 10:29 PM EST

Magnus1964 profile image
Magnus1964

I drink one or two cups in the morning then I switch to green tea ( Yama Moto Yama green tea). Lots of tea. I prefer the Japanese sencha.

henukit profile image
henukit

Reading this quite entertaining thread with a cup of freshly brewed coffee... ;)

Cheers!

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