Could this really happen?: Received... - Advanced Prostate...

Advanced Prostate Cancer

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Could this really happen?

lincolnj8 profile image
53 Replies

Received this from a friend on Facebook. Can't make heads or tales of this one.

"Just an FYI--talked with my boss. Her son was diagnosed with stage 4 colon cancer last year (Sept) and told he had one month to live.(Married with children) He decided not to do radiation, chemo etc. after very extensive research. He has given up sugar, milk products, (anything pasteurized) and is eating fresh fruits and veggies alot. Trying not to eat anything with additives, preservatives etc. All organic!!! Reading tons of labels. Today--a year and a couple weeks later, he is doing superb!!!!! She thanks the good Lord for leading them and caring for them." COULD THIS BE TRUE. Lincolnj

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lincolnj8
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spinosa profile image
spinosa

I cannot believe such a remission is possible via this approach.

lincolnj8 profile image
lincolnj8 in reply to spinosa

Agreed!!

teamkv profile image
teamkv

I totally believe it is possible. However not all cancers are the same. And how much are you willing to risk? You can do both actually; however to navigate the whole mess you are on your own docs are of no help. The first thing is to have a MO who is a team player, not a 'my way or the highway' sort if you know what I mean. I am certain this son of hers has a very supportive wife and they work hard on it together. Mainstream is cancer is genetic, another camp is it is metabolic. I think both are right to a degree in that one effects the other. There are A LOT of very smart people on here who's life is in the 'game'. Even then you have to choose for you. Blessings to you lincolnj8 and may you let the Lord lead you as well.

lincolnj8 profile image
lincolnj8 in reply to teamkv

I'm not buying into it. I just received the message from a long time friend. My MO has done wonders for me. Thanks for your input..

Darryl profile image
DarrylPartner

does that mean cancer didn’t exist until the 18th century?

lincolnj8 profile image
lincolnj8 in reply to Darryl

Probably didn't until people discovered it.

ctarleton profile image
ctarleton in reply to Darryl

The 2011 Pulitzer Prize winning book, The Emperor of All Maladies: A Biography of Cancer, written by Siddhartha Mukherjee, an Indian-born American physician and oncologist, provides some extensive history of Cancer, dating back over 4,000 years. It still remains highly recommended for all cancer patients and their families.

Hotrod65 profile image
Hotrod65 in reply to ctarleton

I have read it on advise of my Oncologist...very well written and informative.

lincolnj8 profile image
lincolnj8 in reply to Darryl

I won't risk my life on a great story. Only reason that I posted that was because a life long friend came up with the story. Sometimes I get desperate in thought for answers. One year ago I was in great health, no pills no worries. Stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

I don't think it matters unless it can be reproduced by a significant number of people. Nobody should try anything that supposedly worked for one person outside of a science-based protocol.

This is exactly why as cancer patients we need to look at trials involving large numbers of people, not individual anecdotal stories that sound "to good to be true".

lincolnj8 profile image
lincolnj8 in reply to

So true.

Tall_Allen profile image
Tall_Allen

These testimonials are usually from some second or third degree person.

lincolnj8 profile image
lincolnj8 in reply to Tall_Allen

This was from a long time friend. Stage 4 cancer is stage 4 cancer. We all (including me) would love a cure. My MO has brought my life back. Psa at 800 9 months ago, under 1 today. My wonderful daughter might have bought into this. She's all into nutrition healing people. I've never heard of a diet to cure stage 4 cancer.

Tall_Allen profile image
Tall_Allen in reply to lincolnj8

It was from your friend's boss's son - 3 degrees of separation. I think your skepticism is warranted.

lincolnj8 profile image
lincolnj8 in reply to Tall_Allen

I won't risk my life on a great story. Only reason that I posted that was because a life long friend came up with the story. Sometimes I get desperate in thought for answers. One year ago I was in great health, no pills no worries. Stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

The guy got lucky.

lincolnj8 profile image
lincolnj8 in reply to

Maybe never had cancer. Very risky approach

You should try to actually meet this person to see if he even exists at all. I'd say there's a good chance he doesn't.

lincolnj8 profile image
lincolnj8 in reply to

Great idea, Thanks

RA-MA profile image
RA-MA

We have a friend who is into this alternative approach. She was so sure she cured her new husbands prostate cancer that she tried to talk him out of surgery. He went ahead with it. They knew ahead of time it was most likely confined to the prostate. Pathology showed it was confined after surgery but still had cancer there. Had he listened to his new wife,his cancer would have spread. She did not cure him and there was science to back up the proof. I understand Steve Jobs listened to a vegan diet to cure his cancer and regretted it at end of life. You can’t unwind the clock.

lincolnj8 profile image
lincolnj8 in reply to RA-MA

I won't risk my life on a great story. Only reason that I posted that was because a life long friend came up with the story. Sometimes I get desperate in thought for answers. One year ago I was in great health, no pills no worries. Stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

Balsam01 profile image
Balsam01 in reply to RA-MA

my daughter's friend, who has a husband and 2 small pre-ten boys, is into this alternative stuff for her lung (I think) cancer. She forwent chemo and radiation for IVs of some type of vitamin concoction. My daughter and my wife just witnessed the final directives documents and will. I have wondered why she didn't try and go the traditional route but it was all ideology with her.

in reply to Balsam01

Had a good friend that went with an "alternative to treatment" quack doctor for his prostate cancer. They tell you what you want to hear. Things like the body will heal itself if you give it the right diet and supplements, etc. All of these conventional treatments are toxic to your body and just promoted by greedy doctors and big pharma. They just prolong your life to milk more money out of you. They don't want to cure your cancer like we do.

He fell for the pitch and insisted he was getting better. Those around him could tell he was getting worse and tried to talk him out of this approach. But he died with no real treatment at all. Left his wife with a pile of debt, I guess the quack doctor wasn't doing it for charity (surprise, surprise). If you are going to have a greedy doctor, I'd prefer one that at least offers treatments that work.

lincolnj8 profile image
lincolnj8 in reply to

My lovely daughter is into the right diet can maybe heal you. Last Christmas, stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. On Lupron, zytga and prednisone. Psa was at 800, now .05. Doing great. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

lincolnj8 profile image
lincolnj8 in reply to Balsam01

Sometimes people buy into "alternative treatments". I didn't know what a MO doctor was that specialized in prostate cancer was till my 3rd day in the hospital. Never, ever sick, went to the hospital feeling dizzy and weak. Spent 3 days in the hospital and 4 pints of blood to stay alive. Blood was at 5.5, should have been at 13.5. Got a great MO at the hospital. Lots of b-12 shots, then Zytiga, prednisone, Lupron and Oscal for the bones. Like j-o-h-n, I like my chocolate chip ice cream..

Hazard profile image
Hazard

Even if it is true - so what? I have been on vegan and gluten free diet since early 2017, after IMRT and before ADT. The diet has been good and I have lost 20 kg but while on this diet I became hormone refractory after 6 months (failure of both 1st and 2nd line hormone therapy) and chemo resistant after another 6 months. Apart from brief respite at start of ADT and start of chemo PSA double time remains around 1 month. Vegan diet has done nothing to slow disease progression. But I stick with it because I get better QOL.

My point being I am very happy for this individual if this story is true. But what works in one case is not guaranteed to work in any other case. You would be foolish to give up conventional medicine for a vegan diet.

could alot of people are dx with all kinds of cancer with fillers maybe just clean food is all we need clean our bodies inside and who knows

lincolnj8 profile image
lincolnj8 in reply to charlesmeyers1964

I'll stick with my MO

Scruffybut1 profile image
Scruffybut1 in reply to lincolnj8

And definitely me too. MedOnc with great team in a major cancer hospital. Happy days....mostly. God bless all of us and keep us smiling.

CalBear74 profile image
CalBear74

Tall_ Allen and Gregg57 have nailed it. As I learned from my experiences in the anthropology department at Cal, when you are field collecting folklore material be aware of the informant's use of relationship descriptor language, like "friend of a friend", a FOF. You have likely tapped into a vein of folklore material if you hear the informant describe the source with that language. Here you have medical folklore. A friend on Facebook has a friend (i.e. the boss) who has a wife who has a son. This motif of the "Miraculous Cure" is fairly popular. Good work. Now go and get another 5 or 10 more narratives like it and publish your collection in a journal article.

The above is dedicated to Alan Dundes, one of America's finest folklorists - ever.

CalBear74

lincolnj8 profile image
lincolnj8 in reply to CalBear74

I won't risk my life on a great story. Only reason that I posted that was because a life long friend came up with the story. Sometimes I get desperate in thought for answers. One year ago I was in great health, no pills no worries. Stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

CalBear74 profile image
CalBear74 in reply to lincolnj8

You might find these helpful:

healthunlocked.com/advanced...

amazon.com/IP6-Inositol-Nat...

nutritionfacts.org/video/tr...

lincolnj8 profile image
lincolnj8 in reply to CalBear74

Will read. Thanks for the info..

billy1950 profile image
billy1950

I recently attended a weekend workshop in Upstate NY .

The researcher had interviewed over 1500 people who have gone thru some kind of 'remission'. Her book is "Radical Remission". Her book/research is quite interesting and worth a look at...'diet' was only one of the "factors" that people talk about who have experienced some kind of remission. (There are 9 factors all together). Possibly her son was also doing other things as well to boost his immmune system, etc. i would like to know what else he may have done...like exercise, keeping a positive attitude, some kind of spiritual practice, etc. All of which are included in this author's research....blessings and peace!

lincolnj8 profile image
lincolnj8 in reply to billy1950

I'll try to find out what else was done.

jerigroves profile image
jerigroves

I've never commented on this forum in the past, but my husband is a Stage 4 colon cancer survivor. He had emergency surgery and a colostomy on 2/11/16. We had a PET scan (self-pay since CIGNA wouldn't pay for it) and the PET scan found a small (3 cm) tumor in his liver--hence the reclassification to Stage 4 colon and liver cancer. He started chemo (FOLFOX and Avastin) in March, 2016. We read the work of Dr. Thomas Seyfried, and immediately switched to a VERY low carb (under 10 grams per day) ketogenic diet which we diligently maintain to this day. We purchased two outstanding texts by Ellen Davis and Miriam Kalamian to figure out how to eat "ketogenically". Our oncologist said he had NEVER seen complete and total remission (no sign of cancer or mets) within 3 months (June, 2016). He had NO sign of colon or liver cancer until a routine check in June of 2018 showed a small (1 X 2 cm) recurrence of cancer in his liver. That will be surgically removed in October, 2018 after 6 additional rounds of chemo (FOLFIRI) shrank it to a 1 cm liver tumor. Guy also had high-dose intravenous infusions (the port was there anyway, right?) of tumeric, artesunate, and Vitamin C, plus an immune-support vitamin cocktail. In 2016, he had infusions 4X/week (M-Th) on the "off weeks) from chemo. After the cancer recurred, he's been having just Vitamin C and tumeric infusions 3X/week. He also takes numerous supplements (as advised by our naturapathic integrative physician and our acupuncturist).

This all started when Guy had a rising PSA, and the colon and liver cancer nixed any treatment of that until after he completed his course of treatments and had his colostomy reversed. His PSA continues to rise and fall, and he has never had a prostate biopsy or any prostate-specific treatment (ADT, etc). He has relatively minor symptoms (gets up to urinate once or twice per night, uses Viagra when we are intimate), and in light of the "bigger" colon and liver worries, we have decided NOT to pursue ADT and give up one of the true pleasures of a 44 year marriage. The quality of life he has now is excellent, and we'll look to less debilitating methods of combating the (likely) prostate cancer once he recovers from the liver "segmentectomy". We're considering hyperthermia in Germany and possibly Gerson therapy. We know, for a fact, that there is no metastasis of his prostate cancer (confirmed by two prostate MRIs as well as PEAT scans every 6 months).

We've come to believe that you are what you eat, and the standard American diet of high carbs and the wrong fats and oils contributed to his original colon cancer. It sounds counter-intuitive to eat a high fat, low-carb, moderate protien diet, but his cholesterol levels actually dropped, as did his A1C and his CRP test was excellent. No signs of inflamation. Hopefully, despite our lack of aggressive treatment of the rising PSA, he may be one of the men who dies WITH pCA and not FROM pCA. He'll also continue to have a wonderful quality of life, which, from what I read on this forum, many (most) men do not have after standard prostate treatments (no matter what kind).

lincolnj8 profile image
lincolnj8 in reply to jerigroves

Very impressive!! Good luck to you, this is working for you

Advo__cate profile image
Advo__cate in reply to jerigroves

This is great! My husband is on the Ketogenic diet recommended by his integrative oncologist & naturopath & dietician. MO is on board, he even stated he has an M.D. as a patient who wants nothing to do with Lupron and is keeping his PSA in check with the Keto diet and hyperbaric chamber (he didn’t mention if the patient was stage IV, so that may be a factor in why the MO is going along with this M.D.’s plan).

Anyway, my husband should be experiencing the ADT metabolic syndrome, but his lipids are normal as is his A1c. We are working on his blood pressure as his systolic is wanting to creep up to low 140’s.

He does feel much better, working full time, with a some energy left over to kayak on the weekends and keep up with other things.

I’m dairy free, sugar free, grain free, and it has absolutely changed my life. No more arthritis, aches and pains, honestly, I feel better today than when I was in my thirties and forties.

Thanks for sharing.

lincolnj8 profile image
lincolnj8 in reply to Advo__cate

My lovely daughter is into the right diet can maybe heal you. Last Christmas, stage 4 cancer, 3 days in the hospital and 4 pints of blood to stay alive still has my wife and I in shock. On Lupron, zytga and prednisone. Psa was at 800, now .05. Doing great. This forum is tried and true paths to a better life with advance PC. And I really appreciate all feedback, thank you..

j-o-h-n profile image
j-o-h-n

I'll stick to my chocolate chip ice cream (two scoops).

Good Luck and Good Health.

j-o-h-n Thursday 09/27/2018 12:24 PM EDT

lincolnj8 profile image
lincolnj8 in reply to j-o-h-n

Ice Cream? Me too. And chocolate chip is my favorite!! 3 scoops for me. lol

in reply to j-o-h-n

Now I have a craving for an In-and-out Burger Vanilla shake. Thanks a lot.

j-o-h-n profile image
j-o-h-n in reply to

Have two.... My treat....

Good Luck and Good Health.

j-o-h-n Thursday 09/27/2018 7:12 PM ED

Advo__cate profile image
Advo__cate

I’m voting...yes, this can happen.

Why?

- Spontaneous regressions, for whatever reason, they do happen.

- The FB msg doesn’t state the young man is in remission or cured. It states that he feels “superb” a year later after diagnosis.

- I am following and have spoken with a young woman who found out she had stage IV colon cancer with liver metastases (one tumor found at the time of diagnosis) last year in early December, almost a year.

She opted to not go with the chemo because the docs themselves told her the stats are not that great with her cancer and that her quality of life would be greatly disminished. She has five young kids and wants to be with them as long as she can with quality of life. (This is her choice between her and her husband and their Lord Jesus.) Docs did continue to urge her to submit to the chemo calling her weekly to come in to begin treatment.

After some research she decided on a vegan diet and multiple supplements. She is also seeking integrative treatment at a clinic in Germany. There, they told her to add more food to her diet to gain weight for her next treatments. She has added some wild caught salmon to her diet among other organic foods and has put some weight on looking much better. While in Germany last month they found two more spots on her liver but the original one is much smaller. while in Germany they found her to be extremely anemic with the docs here totally missing it. German docs told her that they didn’t know how she was still walking, but they fixed the anemia issue.

Almost, but not quite a year later she says she feels “exceptionally well” and woudn’t even know she has cancer except for the scans showing it.

———> So, yes, one can feel “superb” after a year with stage IV colon cancer. It is possible.

She has more scans coming in early October, I’m anxious to see what has happened over this past month. I’m praying for a spontaneous regression for her and her young family.

Last thought on this...be grateful for the person who cares enough for you to send you things about “healing” cancer. Let them know you appreciate the time they went to to send it to you. You may slough it off, please don’t let them know that you did. Just be grateful for each person who is in their ow way desiring to help you get through this trial.

Just my thoughts.

Peace to you, Lincolnj8.

I've seen a lot of people who will spend an enormous amount of time discussing the alternative therapies they did in detail and how effective they are against their cancer. Buried somewhere in the lecture is the fact that they also did chemotherapy, or some other coventional treatment. Maybe they don't even mention that. The important part is the alternative therapies. Just an observation.

I've also seen people with low risk, Gleason 6 prostate cancer lecturing about how they are keeping the cancer from progressing with their superior diet (everyone take notes please). Most likely, they could have done nothing and got the same result.

There's nothing wrong with eating healthy. I think it's a good thing, I just don't think people should be bragging about how it's curing their cancer. I don't buy it.

lincolnj8 profile image
lincolnj8 in reply to

I agree with you 100%

rfarley01 profile image
rfarley01

Could have been a bad diagnosis in the beginning or Divine intervention

Crabcrushe profile image
Crabcrushe in reply to rfarley01

Agreed, although I had an experience in which my liver functions ceased and was cured by fasting for 42 days (water and beef bullion only).

No physical activity other than going to the bathroom.

No telling what poisons got filtered out as my liver healed, but once I got my coordination\muscle "tone" back, I felt like a new human; I could run all day.

Of course the liver will benefit from not having to work, and my experience has nothing to do with PCa, but I can't help but to tie extremely good health to extremely good nutrition.

Haven't studied the Keto diet, but I assume that it forces the body into ketosis (?), which sounds pretty drastic.

Nous Defions

Break60 profile image
Break60

If it’s true he’s lucky as heck!

Zetabow profile image
Zetabow

When I read these stories I always think of the bad one's as well, look what happened to Steve Jobs. No harm in changing diet but trust your MO as well.

lincolnj8 profile image
lincolnj8 in reply to Zetabow

I agree 100%

Cisco99 profile image
Cisco99

I have no idea. I have my own mystery. I have a dozen mets in my skeleton, and I had some in my lymph nodes. Now, however, the mets in my lymph glands have disappeared. And I'm an atheist, or recovering Catholic. I am not "cured," but I am not familiar with this happening on regular basis. Maybe I'll set up a shrine.

lincolnj8 profile image
lincolnj8

Me too. A shrine. Eeeeehaaaa. lol

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