I am 61 years old, married for 2nd time for 21 years to a special woman who gave me 2 wonderful kids, now 17 & 19, and an adopted son from my first marriage who is now 33 and living with his girlfriend. I was diagnosed with prostate cancer in April 2018. I had been seeing my PSA numbers slowing rising over the past 5 years and even had a prostate biopsy when my PSA was 5.6. It showed 12 benign cores. Then it rose to 6.88 and I believe they figured it might be due to an enlarged prostate 1 year later. Nothing really seemed to be a major warning sign and this was August 2015. My next full exam was Nov 2016 and now my PSA was 8.54 and they wanted to do another test. That test came back as: PCA3 positive (56) which wasn't accepted as medical proof of cancer due to the nature of this new test. My insurance didn't even cover the cost of this test and I couldn't get into a cancer center with these test results. I was very confused but figured it must not be that alarming if a well know cancer center wouldn't accept me as a patient. My next physical in April of 2018, this year, proved to be the high mark of PSA 14.9 and the tests began. 4/11/18 - MRI prostate - 21.6cc; left mid PZ posterolateral lesion - PIRADS 5. 4/25/18 - Transrectal ultrasound and prostate needle biopsy - 4/12 cores with Gleason 9 (4+5). Large hypoechoic lesion left base peripheral zone measuring 13.98 mm x 16.22 mm with some regularity. SV was negative. Then I was sent on 5/14/18 to get a whole body bone scan to see if the cancer was anywhere else in my body which came up negative. I was told that this was an aggressive cancer and therefore not a slow growing type. I made my decision to have the prostate removed over radiation treatment. 6/14/18 - I had robotic assisted laparoscopic radical prostatectomy and bilateral pelvic lymphadenectomy - now Gleason 4 + 3 which was a lower Gleason score. No seminal vesicle invasion, negative surgical margins, and 22 negative lymph nodes removed. I felt the surgery went well and I was soon out of the hospital in 2 days. I was only surprised about the 22 lymph nodes that were removed and thought that seemed excessive but there were signs that they might have been questionable. I was still retaining quite a bit of fluids in my body cavity that they said would go down in a few days or week. Unfortunately, the fluids got worse and started to settle in my lower private area around my testicles. This became so uncomfortable that I had to sleep in a recliner and keep my legs elevated to reduce the swelling. Nothing was working and I decided to call the surgeon and explain what was happening beyond normal fluid retention and he sent me for a CT. After seeing the results he admitted that amount of fluid was abnormal and prescribed Lasiks which I only took every other day. After 6 days I had lost over 10 lbs in fluids and started to look normal again. During the recovery period after surgery I also was having a lot of bladder issues and couldn't control my urination flow. I had to wear pads all the time and once I saw the surgeon he decided to send me for "pelvic floor rehab" which I didn't even know what that meant. Once I realized the reason to strengthen my pelvic floor muscles I was eager to do anything to help control my weak bladder control issues. The first 2 places I called for PT for pelvic floor rehab did not accept men as patients. Now I was really confused and wondered why this would be such an issue. I certainly didn't have any issues being naked in front of any PT professionals if that were even necessary. I had been through enough procedures already that nothing new was going to bother me. I did find a very reputable PT rehabilitation center that did provide that pelvic floor rehab for men and it has been 5 weeks, once a week and the therapy has helped with my bladder control. Less pads as well. My big question to the group is that on 7/25/19 I had my PSA tested now after the prostatectomy surgery and it was PSA 0.7 reading. The surgeon wanted to retest my PSA in 2 weeks which resulted in PSA 0.8 score. Neither the surgeon or myself were pleased with that number. I am getting ready to meet with the Radiation Oncologist this Friday to begin some 9 weeks of radiation treatments. What do you think? Is there any special type of radiation that is for patients after their prostate has been removed? I certainly don't like the idea of radiating that general area in the first place. I already have enough complications with incontinence and ED. I feel like I am battling 3 things now instead of just cancer!Read less
After surgery and now PSA 0.8 - what'... - Advanced Prostate...
Advanced Prostate Cancer
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