I am coming on 2 years since my RP with lymph node dissection and left nerve spared. It is 8/22/18. I also am celebrating 15 years on 8/23/18 since my aorta dissected. I have a lot to be thankful for. My PC discovery was a miracle in and of itself, if I had not had to have my hip replaced (3rd) attempt, I would probably for sure be way worse off.
So, I had the RP and after my first couple of PSA tests, it came back:
IDDatePSA ScoreLocation of TestComment
10/12/2016 <0.015Dr. Porters OfficeLab Corp
2/15/2017. <0.015Dr. Porters OfficeLab Corp
2/2018 0.009Dr. Porters OfficeLab Corp
3/16/2018 0.008Dr. Porters OfficeLab Corp
8/9/2018 0.014Dr. Porters OfficeLab Corp
Fast forward to today. After I got my last PSA result of 0.014, I began to realize that I still have PC cancer as I thought the RP would remove it. Now, my mind is in overdrive and thinking that "oh... OK.. it's official, you now have a death sentence" and have "x" number of years left. However, I am a Christian and play competitive tennis for my age group (55's) and I am not going to give up on my faith.
My original Urologist said, your psa is still low, lets continue the 3 month plan still. However, I must have pissed him off that he said and did book me an appointment with a Radiation Oncologist. Which, I have decided that I am going to wait on. I have tried to take matters in my own hand and have several appointments coming up. My first one is with one of the top Oncologists at Seattle cancer care alliance Dr. Yu. That is on the 29th of this month. Then, I am going back to where I originally had my biopsy, Virigina Mason and seeing my original urologist Dr. Coreman and then on the same day 9/6 I have an appointment with the head of Radiation Oncology. Dr. K.
One thing that I am struggling with is where to get the treatment? What type of treatment? Does one place have a better radiation machine?
From what I have gathered, there's quite a few great places in the Seattle area to get the care. My gut is leading my back to Virginia Mason, where I had my hip replaced as they seem to have studies about their PC success long term rate.
I can't stop thinking about my new diagnosis and it seems to be on my min 7*24, in fact, today we are meeting my mom for her b-day celebration and ironically my father just has a Pelvice MRI yesterday as his PSA (80 years) was like 7. But, I can't let this run my life. I guess what is really the issue is it seems now for sure, I am going to die. But... prior to PC, I thought I only had 5 years after my aorta dissected. But, I took action and said, fight back. I started a website, aorticdissection.com and now have almost 600 stories from all over the world. I am also journaling on my other site, briantinsley.com and help me through this next adventure of PC cancer.