Chemo 18 dripping now. Good news on r... - Advanced Prostate...

Advanced Prostate Cancer

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Chemo 18 dripping now. Good news on response.

Dan59 profile image
47 Replies

Chemo 18 is 12 docetaxol and this is 6th jevtana. Stay the course, put next one off till 4 weeks for the Cornwall trip. The comparative bone scan showed marked decrease metastatic disease in right hip. Also on the ct many other spots were reduced. Mildly anemic 3.17 on red blood cells, whites are at 6.7, gettin nuelasta every time with Jevtana. Alk Phos though ithas been in range since the first chemo was 84 so it dropped. Before chemo it went out out of range for first time since dx in June of 06.PSA stable going from 120 to 124. All good news. Looks like I am going to be around for a while HappY Dance.

If I was diagnosed now I would have been put right on docetaxol chemo 6 short rounds and breezed through it, Woman have been doing it early in Breast cancer for 15 or more years, About 5 years ago in the Stampede trial and charted trials they discovered using early chemo in high risk patients , with initial ADT brought a better survival. Here is the paper on that study that anyone could bring to thier Medical Oncologist (MO) ascopubs.org/doi/10.1200/JC...

thelancet.com/journals/lanc...

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Dan59
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47 Replies
ITCandy profile image
ITCandy

Best news I've heard all day. Hang in there, my friend.

Better days ahead!

in reply to ITCandy

Me too.

Dan59 profile image
Dan59 in reply to ITCandy

Thank You ITCandy, and Lulu.

in reply to Dan59

We are smiling for you. Thanks , any good news it soothing to the ear. Very good...

joancarles profile image
joancarles

Great news Dan. To continue dancing

Dan59 profile image
Dan59 in reply to joancarles

Thank You, I hope your are doing well, I beleive you are in Barcelona, I was there two years ago, toured over to San Sebatian and then to Lourdes and around pyrenees and found Barcelona to be a great place to visit, food was awesome, People were so friendly!!On Dancing> vimeo.com/72026611

joancarles profile image
joancarles in reply to Dan59

Hello dan! I'm still fighting and pretty good. Adapting to this new situation, it took 9 months. I live on the coast 20 km from Barcelona city. A pretty city.

Inspiring me with histories like yours. a hug

Jscjac profile image
Jscjac

Wonderful ! So glad to hear your news.

Dan59 profile image
Dan59 in reply to Jscjac

Thank You

Tall_Allen profile image
Tall_Allen

That is a great response! I hope that, reading your post, more guys will use chemo sooner instead of fearing it.

Dan59 profile image
Dan59 in reply to Tall_Allen

Thank You! Yes for me and many others on here chemo has not been bad at all, there are some things to mitigate the side effects , that make it tolarable. Dr. Stephen Strum told me in a p2p forum back in 06 that with my stats I should do docetaxol then while the body was strong, hit it early with big gun, and combine with keto for synergy.Strum was ahead of his time .Unfornately it was not SOC then and Drs at Dana said no. Even being on ADT for over 10 years, significantly weaker/older, I still tolerated chemo well, It was definitely not the monster I had feared for over a decade.

jdm3 profile image
jdm3 in reply to Dan59

This is encouraging news. Thanks for posting.

I am also treated at Dana Farber. SBRT to met in right hip and six months of ADT (Lupron and Casodex) so far. I have my follow-up with them next week and one of the first questions is why not do chemo earlier and why not Zytiga if that is the new standard of care and shows a survival advantage?

Hope you keep doing the happy dance for many more years.

Josh

in reply to jdm3

The key. While the body is strong and the tumor burden minimal.

GD

in reply to Dan59

That’s amazing.

Freakin Superman.

LF27 profile image
LF27

Excellent Dan! Congratulations on the great response! HT for 10 years, aye? wow!

I'm scheduled to start w 1st Lupron shot in July, and also being treated at Dana Farber.

All the best for continued progress ahead.

Dan59 profile image
Dan59 in reply to LF27

Dana Farber had a lot to do with my survival, I went there for over 9 years. One of the best.

dadeb profile image
dadeb

Great news just in time for your trip.💪 Enjoy! Hope you get all sunshine and no rain 🌻

Dan59 profile image
Dan59 in reply to dadeb

Thank You Deb, I hope for all sunshine, but in reality I know it rains more in coastal climates. I wish you and your Dad the best.

Dan

Karkawry1970 profile image
Karkawry1970 in reply to Dan59

Yeah, it's been pretty muggy here the past few days, but it can all change in the drop of a hat, it's a very narrow peninsula, and if it's raining one side, often times your can drive 20 minutes to the other coast and be in a different micro climate.

Chiquis profile image
Chiquis

Congratulations!! I admire your attitude.🙏💛

Dan59 profile image
Dan59 in reply to Chiquis

Thank You for your kind words Chiquis. Wish I knew how to do the emoticons.

Chiquis profile image
Chiquis in reply to Dan59

Hi Dan, it's really easy. There should be a smiley face icon at the bottom of your keyboard. You should find them there 😊

Dayatatime profile image
Dayatatime

Great to hear Dan. You are a true testament how strength and spirit can overcome anything. Enjoy some well deserved time off. If your in the St Lawrence River area this summer let me know. The fishing is hot!!

Ron

Dan59 profile image
Dan59 in reply to Dayatatime

Thank You dayatatime, Even the ride in the boat sounds great, I will be 100 miles away from you most of the summer, and I would like to get together.Thank You

snoraste profile image
snoraste

This is fantastic news. Keep it up!

Dan59 profile image
Dan59 in reply to snoraste

Thank You

paulofaus profile image
paulofaus

Awesome news Dan. Remember, we have to meet for that fishing trip in 2023! Nice to see you're keeping your end of the bargain. By the way, there is a guy in my physical support group who has had 80 chemo shots now. Cheers Paul.

Dan59 profile image
Dan59 in reply to paulofaus

Paul, Yes the trip willhave to be spring2021, I know others are interested, lets keep it going. Thanks for your kind words. Thanks for telling me about the guy w 80 chemos, I seem to breeze right through them, right now20 hours after I am up at 530 am having coffee after barely 4 hrs sleep, may be the extra steroids. Wife held my nose to the grindstone with honeydo projects all day yesterday.

paulofaus profile image
paulofaus in reply to Dan59

For sure Dan, I'll update the diary. I had trouble sleeping while on chemo, I never thought the steroids could be to blame, but it makes sense.

dlestercarlson profile image
dlestercarlson

Thanks for sharing this information. This is great news and I hope you continue to progress with your treatment. I just finished my 12th docetaxol treatment. I will have a few more of these before taking a Chemo holiday, then will be switching over to jevtana. I hoping for good results from this.

Dan59 profile image
Dan59 in reply to dlestercarlson

I also did 12 docetaxol, psa stayed stable for a while when I went on my chemo break, I have found jevtana to be less bothersome to me than docetaxol, although it can be harder on anemia (Red Blood Cells) and nutropenia(whites) for this reason I am taking the nuelasta, where I did not need it in docetaxol. I wish you the best.

Awesome! Great news, continued progress and happy living.

JamesAtlanta profile image
JamesAtlanta

Congratulations, Dan!

Litlerny profile image
Litlerny

That’s great news, Dan! I’m very happy to hear of your positive response. Keep it up, brother!

Keep kicking that bastard down. Great news, Dan.

Gourd Dancer

Stelle profile image
Stelle

Thank you. I had always thought that chemo. marked the end of the line and I would refuse it when the time came. But it seems from following this forum and reading your upbeat report that I may have been wrong. Perhaps Chemo has improved in recent years?

Dan59 profile image
Dan59 in reply to Stelle

Their are many different chemos, I think they have got the premeds down now and that is important. Chemo gets its bad rap from some of the early primitive chemos and patients were not given such premeds as aloxi for anti-nausea.

IN the old days , now just even 6 years ago in APC,chemo was a last ditch at the end when all else fails in APC. They have found giving it to patients earlier when the body is still strong and the cancer is weak is mobetta, even so I seemed to breeze right through the first 6 rounds of docetaxol no prob late in the game 10 years out. They also have second line chemo for apc now, that is what I am on and getting a good response.

Stelle profile image
Stelle in reply to Dan59

Thank you so much for the feeling of relief and hope.

leswell profile image
leswell

If only we had learned to dance! Wishing you both a memorable trip. Jan and Les

pinejog profile image
pinejog

Outstanding Stay Strong💪

j-o-h-n profile image
j-o-h-n

Dan's Da Man.....

Good Luck and Good Health.

j-o-h-n Thursday 05/31/2018 7:53 PM EDT

Nicnatno profile image
Nicnatno

Great news to hear Dan. Happy trip. I'm taking my family to Puerto Rico in late June then Maui in Aug. I will be leaving the PCa behind.

Nick

Hi Dan, my dad was told Zytiga first, but I think chemo would be good since he's a young 72 year old. Not all docs say go straight for Taxotere but I'm worried if we don't zytiga will fail and he'll have to do chemo soon anyway.... uhg. Decisions...

Dan59 profile image
Dan59 in reply to DaughterOnAMission

He could do xtandi after zytiga. It is always good to have something to do waiting in the back pocket. For now ride the zytiga train as long as you can. Going for 19th chemo tomorrow.

Dan59 profile image
Dan59

Day after chemo 19.I wish I had been offered early chemo, Myers always said the key to any cancer is to somehow obtain a complete remission early on, 12 docetaxol,7 jevtana, RBC 3.07 continues to slowly drop. hemoglobin was 9.7, normal is 11.5, and they do transfusion at 8.0, so I am still doing good and they say they have not seen anyone tolerate Jevtana so well. Wbc were 4.7 on nuelasta, and in range, psa bounced to 143 from 124, but 3 months ago it was 144, so these changes are fairly insignificant and still riding the train. It was like old home week in the chemo room, we were all singing and telling stories, like we always do. I have been treated there for 12 years. One day I will have to take a chemo break and go back on xtandi. Gonna keep positive and ride the train. I just keep on keepin on, wife and I went to broiled fish dinner after chemo, and hung out with her and daughter in the evening. Some time when I get to a significant crossroads I will make a post, I feel like I am making it to the distant shore with this disease, being in my 13 year, just happy to still be here . Keep doing things , spend time with Family, and plan future trips.

Cynthgob profile image
Cynthgob in reply to Dan59

Dan are their different measurements for psa? When you say 143 is that one hundred forty three? Or do you have decimal points in there? Just wondering as I read to hope for less than 4.00 . Right now my husbands is 10. But waiting for new results. Just nervous about interpreting wrong. Thank you!

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