New member diagnosed at 44

[irichka172]

Hello, everyone! I just wanted to express how grateful I am for this site and for all of you guys sharing your stories... I stumbled upon it very recently. My husband has been diagnosed this past Dec 2017 at the age of 44. Gleason score mostly 8's, one 7 and one 9 out of 12 samples. Metastases to pelvic bones, spot on the right rib, PSA 244. He is currently on Lupton and going through chemo, just finished #4. It is devastating since we are newlyweds who were hoping to start a family... but we banked his sperm via testicular biopsy and will proceed with IVF in July. His PSA went down to 1.7 on Feb 28th but is now up to 3.1, so I am trying not to panic. We went to John Hopkins in Dec and are now staying with my sister in Arizona while he is going through chemo at Arizona Oncology. Has anyone had any good experience with Mayo Clinic in AZ? Any docs anyone would recommend? I am wishing everyone a very happy Easter. You guys are CHAMPIONS!!!

[Tjc1]

Hi, so sorry your here. Its devastating i know for any of us to have to go through this and even worse at such a young age. I was 52 when diagnosed. Luckily with all the treatments they have your husband should have many years. I cannont give you any info on doctors in Az but somebody here can I'm sure. The best of luck to you and your husband. Take care!

Thomas

[irichka172 in reply to Tjc1]

Thank you so much! This site is SO inspiring and positive... you guys are all absolutely amazing people. Truly.

[Darryl Partner]

You are invited to join the spouses and partners group, while reaping knowledge and support here healthunlocked.com/prostate...

[irichka172 in reply to Darryl]

Thank you so much, dear Darryl. This is very helpful!

[irichka172]

Thanks so much! That would be fantastic. We would definitely like to get at least a consultation at Mayo. Wishing you strength and great health.

[Hidden]

Do you check clinicaltrials.gov/ct2/sear... ?

You can see what doctors are trying.

[podsart]

This is truly a great site with wonderful caring talented members

Suggest you consider getting a genetic analysis, if not done already, so you get a better idea of what u r dealing with

Also, might want to discuss use of Xtandi or Zytiga, given the aggressiveness of Pca and path of PSA

Support for you as partner is important , especially as u guys r newlyweds

It is interesting that younger men are getting this disease than what I believe was seen in the past

Wishing u guys much luck

[Mam1214]

Hi, my Dad is seeing Dr Bryce at Mayo in AZ. He’s newly diagnosed but has liked him so far.

[Hidden]

Sorry you have made your way here but you have found a good place...44 is so young. I found out i had this crap at 53,im 58 and going strong......Hang in there and keep enjoying life and love...... Gods speed and God bless