Hello, I have been blood transfusion dependent for the past year. I go on a weekly basis. My family and I have been to both Dana-Farber in Boston, and most recently Sloan Kettering in Westchester, New York. Sloan has said that I am in eligible for any clinical trials due to my dependency on blood transfusions. Dana-Farber has not said that. They have mentioned clinical trial one and two phases, but they have nothing available in three or four phase. There was talk of PARP inhibitors trial, however they are not recruiting. I am currently on Carboplatin/Cabazitaxel, all other standard medication I have tried. We just sent a biopsy to Foundation One.
I’m reaching out to see if anyone is in the same situation as I am with these transfusions/trials. My family and I are not giving up!