How to get a PSMA scan at Johns Hopkins

[kmack57]

I am recurrent and would like to get a PSMA scan done at John Hopkins. When I called to inquire I was routed to the oncology department and I got nowhere. Any suggestions on who to contact?

[Steveo3312]

Is the Pet choline 11 an option up at Mayo?

[kmack57 in reply to Steveo3312]

Maybe, but I am really near to Hopkins

[E2-Guy in reply to Steveo3312]

From all of my research, I don't believe that the C-11 PET scan is nearly as sensitive as the 68Ga-PSMA or the Axumin (brand name), fluciclovine (generic name), FACBC (previous clinical trial name). I had the 68Ga scan performed in Melbourne, AU and it identified PCa in my sacral nodes which I had removed via robotic surgery.

[spinosa]

Call urology...

[Steveo3312]

Okay. That makes sense.

[Tjc1]

Axumin scan is what im gettin tomorrow at UMBC. Proably spelled it wrong. Got refferred there from Georgetown University.

[kmack57 in reply to Tjc1]

Thanks, maybe I'll give that a try

[kmack57 in reply to Tjc1]

could you please give me the contact info for the location? I can't seem to find any info, address and phone number would be great, thanks.

[Greenbelly in reply to kmack57]

Go to clinicaltrials.gov and search for specific trials and locations.

[Tjc1 in reply to kmack57]

University of Maryland Medical center. (UMMC) 222 south green st Baltimore. Do you ha a referral from a doctor? Got my scan yesterday.

[cesanon]

1. What kind of psma.

2. I believe UCSF is the place to go with the most experience with psma scans. They started them and have been doing them the longest.

3. Try radiology. And use the the full name not the abbreviated term. And include PET scan when describing it.

4. Where is the doc who ordered this for you? If you are self prescribing, that may be your real problem.

[jdm3]

I had the F-18 DCFPYL PSMA PET Scan at JH in October through a clinical trial led by the lab of Dr. Kenneth Pienta. I do not know if it is still open, but I think it was this one clinicaltrials.gov/ct2/show...

It is a "utility" study and requires bone and CT scans within the last 30 days for comparative purposes.

I also suggest searching through clinicaltrials.gov with key words like PSMA. There are many trials out there all over the U.S. There was also a trial at UCSF that we considered, but that was a gallium tracer. Germany and Australia are options too and much more reasonably priced if you want to take the time to travel abroad.

[Hidden in reply to jdm3]

Spoke with them today. They are still recruiting.

[petercraig2]

I had GA-68 scan in Berlin Germany at Charité International Healthcare.

Excellent service and same day had about 2 hrs consultation with Oncology Director.

My PET/CT scans in Toronto were both clear and GA-68 showed two very small lesions in pelvic area and subsequently had radiation therapy.

PSA was rising and if not not for GA-68 scan would not have had information for follow-up.

Link to summary of a review on different PSMA scans.

pctrf.org/pca-commentary-11...

Good luck

Peter

[YostConner]

urology.jhu.edu

[Hidden]

We had to send all of my husband’s medical records through the medical concierge department. We just got an appointment for March 6th to see an oncologist. He will order the PSMA scan and my husband will get it done there.

[kmack57 in reply to Hidden]

Thank you.

[Davidl3940]

I am getting Gallium PSMA at UCSF next week. I had Auxium PET scan and showed nothing.