Home to visit fam and do Honolulu mar... - Advanced Prostate...

Advanced Prostate Cancer

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Home to visit fam and do Honolulu marathon

dockam profile image
14 Replies

It was a great day to do it - partly cloudy and cool, but felt pretty beat for the 2nd 1/2. My 6th this year- 143rd overall and 20th marathon post PCa Diag in 01/2015. They hand out malasadas - fried dough ball with sugar kinda like a bigger, firmer Beignet. Keep up the fight guys

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dockam profile image
dockam
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14 Replies
Roland632017 profile image
Roland632017

Hi dockam,

Great to see some success story. Good on you mate, I do not think my body can endure the feats you set yourself to do. No wonder you could recover so brilliantly. Toast to your good health.

Dr_WHO profile image
Dr_WHO

You do us proud! Keep running!

smroush profile image
smroush

Fantastic - keep on running - they say it stimulates the immune system and there is a major clinical trial starting to see if heavy exercise slows the progression of cancer. In any case, it keeps you mentally alert and is very heart healthy! I do a lot of bike riding myself. Great accomplishment for you!

motosue profile image
motosue in reply to smroush

How is biking helping you? What is your PSA? I do slow running and I think that it brings in oxygen into my body to possibly help my immune system keep any cancer in check. I have been undetectable for 7 years after being stage 4 at diagnosis. Would be interested to hear from you and how you are fighting this disease.

dockam profile image
dockam in reply to motosue

I have back issues (prolly from he marathons) and I can't ride a bike anymore. If you check my previous post, you can see what I've done. Great for you to be undetectable - I'm at 0.2 PSA - down from 840 in 1/2015

smroush profile image
smroush in reply to motosue

My PSA is 0.2. It's been at that level for about 1.5 years now. I was diagnosed in July 2012 with a Gleason score of 9 and metastases to the pelvic lymph nodes and bladder. I had external beam radiation at the end of 2012 and spent 26 months on ADT (Lupron and Casodex). I have been off all meds for a bit over 3 years now and my condition seems fairly stable. Overall I am doing far better than I expected at the time of diagnosis.

As far as the cancer goes, it is very difficult to say how or if the biking is helping. I bike quite a bit - over 2700 miles this year and last year also. I like to think it does slow the progression of the disease but there is no way to really know. Certainly it helps keep me heart healthy, makes it easier to keep my weight down and I think makes me feel better both physically and mentally. When I was on ADT I think it really helped me cope better with the side effects, especially fatigue.

How about you? An undetectable PSA 7 years after an stage 4 diagnosis is fantastic. Can you share what treatments you've had? Any thoughts on why you're doing so well?

motosue profile image
motosue in reply to smroush

My PSA was 6.3 or so when diagnosed in Oct, 2010. Immediately went on Lupron and I am still on it. Then had Chemo (taxotere/carboplatin), then external radiation outside the prostate and High Dose radiation seed inside the prostate. Then did radiation on my hip where it spread. Then started Xgeva but cut back to every 4 months now. Then started Xtandi and Zytiga/prednisone which I'm still on- both of them.

Go running 45-50 min. about 4-5 times a week. I think the exercising brings in oxygen into my body to help my fight Do push ups, sit-ups almost every morning. I have sleep apnea so I wear the CPAP mask every night which I think it helps keep me breathing oxygen throughout the night. Kind of watch my diet with no meat, low salt, low sugar as possible, no dairy. Got to bring down my weight more.

Testosterone less than 2. So I guess I'm now between a man and a woman. :-)

So been lucky to be undetectable since all of the above. Thank the Lord. I have 2 great doctors. One in Hawaii and the other is Dr. Scholz in California.

Hope that helps.

JamesAtlanta profile image
JamesAtlanta

Congratulations! You are an inspiration to us all!

James

Drcrunch profile image
Drcrunch

Take two beignets and dark coffee quid and good luck.

motosue profile image
motosue

Congratulations! You past my home at 22nd and Diamond Head Rd. Wow, tons of runners who just kept on passing by. Hard to believe. So you go running daily? Great for you for doing exercise. I think this will help us fight any cancer that might come.

dockam profile image
dockam in reply to motosue

Hey, I usually run once a week and do cross training the other days .Exercise has health benefits overall and esp with cancer and while undergoing chemo. Maybe, you can come out next year, cuz I come home every Dec for it.

My story:

blog.athlinks.com/2017/05/1...

Mahalo - Randy

motosue profile image
motosue in reply to dockam

Yeah, right! You have the same thinking as I have in that exercise has a lot of health benefits especially while "undergoing chemo". My belief is that our running pushes the chemo throughout our bodies when we are on chemo to get to the caves and crevices where the cancer might be hiding or lodged in. Thanks for your inspiration. It makes my day.

motosue profile image
motosue

So Randy, do you credit your Vegan diet for keeping your PSA to .2 today? Of course beside doing your exercise.

Did you ever have Sleep Apnea? Or did you ever sleep only about 4 hours a night which might have led to you having the prostate cancer?

Just curious. I am trying to find out how guys get this disease in the first place and what keeps them at low or undetectable PSA. Thanks so much for your wisdom. I enjoyed reading your history in fighting this disease.

Wilfred Motosue

dockam profile image
dockam in reply to motosue

Hey, I have actually started lean ham, fish at least twice/week. Ate a lot of Poke in Hawaii :-) Mostly whole grain, veggies, fruits.Fasting from 9pm to 1pm the next day - sipping tomato/curry broth. Fasted 2 days before each chemo(had 15 in 2015) and was spared a lot of the side effects

Laters,

Randy

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