Help with Gleason scores

[buddy0550]

Hello there Mitch is my name. I wondered how to determine the Gleason score as I have readings of 7-10. Do we average it?

[Dan59]

The gleason score should read with two numbers such as 3+4 which is 7 Or a (4,3) which is also a seven but with the higher grade 4 first it would be considered the breaking point for high risk. The highest most aggressive Gleason is 10.It should be on the biopsy report. a 7 to 10 is a broad range , and should be clarified. You can request that the specimen (which whoever did the biopsy has in wax) be sent for expert review to John Epstien at Jons Hopkins hospital for an expert review, The Gleason score is very important.

Dan

[buddy0550 in reply to Dan59]

Thanks Dan I will pursue this at my next appointment

[buddy0550 in reply to Dan59]

It was weird as my Dr called me on a Sunday to tell me I had a very aggressive cancer that was spreading thru my body. Fortunately it has not shown up anywhere else yet.

[Hidden in reply to buddy0550]

I say that’s a fine testament towards your doctor to call you on a Sunday. We hope for

[buddy0550 in reply to Hidden]

Yes he was a good md but just retired

[dockam]

I assume that was the results of the biopsy - so there were areas that could be GL7 (3+4) is not much concern to a GL10(5+5) which would mean really malformed cancer. What was your PSA history, any symptoms, how is your overall health?

Randy

[buddy0550 in reply to dockam]

Psa was 100 health is ok except for a body full of osteoarthritis and asthma.

I had no symptoms but low testosterone until after the biopsy tho have them now. Wish I had never gone to Dr for sex Help! Lol thanks for responding.

[dockam in reply to buddy0550]

Yea, those darn MDs - prolly saving your life tho. I had no symptoms and a GL7(4+3), PSA @ 840, started ADT(Lupron and Casodex), had 15 taxotere chemos in 2015. Changed diet and added supplements and PSA at 0.1 and Testosterone at 24. Stopped ADT after 30 months.

Best to you on upcoming treatments

[buddy0550 in reply to dockam]

Oh man, I have become aware that I am at the beginnng of this nightmare and so many are suffering so much more. You hang in there buddy!

Thanks for the response

[PaulC2]

If you have any Gleason 10, it is a very serious matter.

[pkafka]

You probably would want to find a really good medical oncologist, preferably a genitourinary medical oncologist (one who specializes in prostate cancer). Don't know where you live, but seek out top doctors, preferably at a Center of Excellence. The level of disease you have is beyond what a urologist should be treating. That is what I would do, and what I in fact did, and so far it has saved my life.

[buddy0550 in reply to pkafka]

Thank you pkaka and good success to you!

[wrando]

Important...make sure they save those biopsies. I've been turned down for two trials because my urologist lost my tissue.

[buddy0550 in reply to wrando]

Thanks I'll do that!

[j-o-h-n]

Hey Buddy get yourself a "good buddy" Oncologist asap.

Good Luck and Good Health.

j-o-h-n Saturday 12/02/2017 11:19 AM EST

[buddy0550 in reply to j-o-h-n]

Thanks John I surely shall!

[warreng]

I'm partial to the Sidney Kimmel Clinic at Johns Hopkins. I too had a high Gleason. I'm a retired food scientist and believe as they do that prostate cancer has a 90% dietary link.