Almost a week about I went to meet up with my daughter's behavioral specialist to go over the blood work. This is when I discovered than not only does she have ADHD combination form, but she also has Jacobsen syndrome. I have gone through what little information there is available. It has left me more confused and worried.
If anyone knows some who has a child/relative that has been diagnosed with this. Can you please let me know the following:
1) How severe is the diagnosis
2) Are there any health issues, if so how severe
3) Are the in school, if so how are they doing and what did they do (IEP, modifications, special school, etc.)
4) Are they part of any group, if so where.
I am waiting to hear the severity on my own daughter. We have a very long road ahead of us, and a lot of doctors. I have joined two groups that I have found. Unique, and a group through 11q. Any information beyond what is on the internet will be helpful.