Short of breath still...: I had several... - Anticoagulation S...

Anticoagulation Support

3,795 members1,338 posts

Short of breath still...

Willow7733 profile image
5 Replies

I had several PEs in December and I wonder if it is normal to be still so short of breath? I am having a hard time having any kind of conversation because I can’t seem to get enough air. Is this a part of the recovery??

Written by
Willow7733 profile image
Willow7733
To view profiles and participate in discussions please or .
5 Replies

Definitely - the clots will have damaged your lung tissue and it takes its own sweet time to repair! My PEs were 3.5 years ago, and I still get very breathless on occasion, not helped by having had Covid-19 a year ago! But they do heal. The secret, I find, is to push yourself gently, but not to overdo it!

in reply to

Looking back I think lots of us had covid back in autumn 2019 but it had masqueraded as a heavy cold and we had thought that we had had bad colds as covid hadn't been officially christened back then.

Jomomo profile image
Jomomo in reply to

Yes Yes Yes! I did! I didn't think of covid until suddenly we had mandatory lockdowns.

in reply to Jomomo

I had heard the stories about it on the tv and radio and I wasn't totally ignorant but still when everything shut down back in March 2020 it was still a shock though like something off a horror movie!

Jomomo profile image
Jomomo

What doctors don't discuss with you is recovery time. It can take years to recover. I had surgery to remove 3 blood clots in my lungs. I thought I was going to bounce right back and have no problems. Doctors don't discuss recovery with you. It can take a very long time. I have an oxygen machine now and my tubes are long enough for me to go anywhere in my home, I'm trying to get a portable backpack oxygen machine for leaving the house. If I walked or exerted myself any little bit I was breathless. I didn't realize my oxygen saturation plummeted every time I did anything physical. Now I can get up and do things because my oxygen is enriching my blood, I keep my oxygen on 24-7. It has made a huge difference in my life. HUGE!

You may also like...

No Blood Test (DVT INR Warfarin) for months now?

anyone else has seemingly been abandoned, or have they cut back on blood tests? My feet have...

INR levels in hot temperatures

range. I have not increased my usual alcohol amount and have been catering for myself so have been...

Traditional Mediterranean diet and warfarin

my diet. I normally eat alot of fresh fruit and veg and have meat free days several times a week. Is

Warfarin - Arterial Calcification

Now I have been advised to take vitamin D as I seem to always be very low, however I have also...

CCG now refusing INR test strips on prescription

work and pleasure as well as having several minor operations where I have had to come off Warfarin...