AntiPhospholipid Syndrome: Hi, Anyone... - Anticoagulation UK

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AntiPhospholipid Syndrome

Arnold1001
Arnold1001

Hi,

Anyone aware of this condition - I’m anticipating to be diagnosed as having it.

Read some content via Dr Google but would welcome any insight from those in the know/with experience of it.

Any guidance much appreciated.

Thanks.

7 Replies
oldestnewest

Yes I have antiphosphlipid and have had for many years. My history is 5 miscarriages 5 pulmonary embolisums a stroke and various other problem with my lungs. There is a great page on healthunlocked it goes by the name Hughes syndrome the other name for aps . You are welcome to private message me if you have specific questions and I will try to help it I'm not a doctor. What lead you to bring tested for aps

take care

Thank you for your reply and the offer of discussion re questions; that’s very kind and I may well do that as questions arise.

The reason for APS testing is a DVT suffered 9 months ago. I’ve had one blood test showing slightly elevated lupus anticoagulant (1.3) and due another test in March.

Hi. I’ve had APS for 18 years. May I suggest the website for APS Support UK as being very good for information on this condition. There is also a site on here (healthunlocked) called Sticky Blood which is an old name for the condition but arises because of our blood clotting so easily.

It’s a complex condition which is not fully understood. The major problem is that our blood clots very easily so we usually are given anticoagulation such as warfarin. But it can cause many more minor symptoms too.

Arnold1001
Arnold1001
in reply to Jumper99

Many thanks, I’ll be sure to check out the sites you’ve referenced.

Best wishes.

Hidden
Hidden

One of my friends has Hughes syndrome and only found out after she kept having miscarriages and when she got given injections of heparin she was fine and has just had a baby.

Being diagnosed with it isn't the end of the world as once they give you your treatment you will be absolutely fine.

Best of luck to you!

Arnold1001
Arnold1001
in reply to Hidden

Thanks, I hope you’re right!

Great news re your friend.

Best wishes.

It is important to know that if you DO have APS, you cannot have the newer anticoagulants. Fingers crossed that you are clear today!!

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