Absolutely normal. I went to my doc in a panic bc I thought I was going to bleed to death. and the clots were HUGE. I couldn't figure out how I could be clotting like that while on Xarelto. He told me that menstrual bleeding is different and to not be too concerned unless feeling unwell, like low iron etc. I got sick of wearing a tampon AND a pad and having to change clothes at work, so I had an IUD put in. I'm 45 and not having kids btw, but the IUD completely solved the issue. I get light spotting now for about 4 days, all I need is a panty liner. Good luck.
Thank you! I thought the same thing. I'm perimenopausal so I hadn't had a period for 8 months prior to this. I have an appointment with a new obgyn on July 15.
Hi Daneball, I was wondering if the IUD resolved your HMB problems? I am on Rivaroxyban for almost 4 months and have spent 66 days since 15 January having a bleed. I am at my wit's end, and I have a phone call with my GP tomorrow. I am 67 yrs of age and up to a month ago I was on HRT which I have now stopped. I feel like stopping the Rivaroxyban completely (it's for atrial fibrillation) but if I do that I am at risk of a stroke. Any advice gratefully appreciated as this is ruining my life. Thanks, xx
I was put on xarelto for DVT and multiple PE's, my period arrived a few days later and I had the period from hell. After 12 days of massive clots (size of fist FTW) and heavy bleeding (superplus tampon plus pad in 20 mins) I ended up in hospital for a few days. Had 3 blood transfusions and 1 iron. Was also put on tranexamic acid and provera (progesterone) which stopped bleeding after about a day. They switched me to Pradaxa and put in a Mirena.
I was then sent home on provera for a 4 week decreasing dosage. On the lowest dose I started bleeding again and it got heavier again (but not like with Xarelto) so for the past 4 weeks have been trying to stop the bleeding with different doses of provera.
I'm hoping I have results with the Mirena like Daneball and some of the other women on this forum who have had great results with the coil.
If you start getting really dizzy etc I think you should see your doctor to see if there are other medications you can get to stop the bleeding. It's so distressing to lose so much blood over a long period of time plus you could be anaemic.
(Daneball - how long did it take for your mirena to start working? I've had mine 8 weeks now, and the Gynae said it could take up to six months :-/)
That's puzzling isn't it? Since Xarelto is an anticoagulant, strange that it should affect one's menstrual flow. You need an answer for sure. Try to do some research through the internet - you may come up with something. These pharmaceuticals have some very interesting (translate that to mean 'weird') side affects. But, after all, we are the guinea pigs for them. We do realize that
their testing periods for drugs are based on what they want the outcome to be.
Sometimes it's not until a decade or so later that the drug will prove to be detrimental to our health.
Be that as it may, I'd be pushing up daisies if it weren't for Warfarin. I have Factor V (5) Leiden and need to be on anticoagulants indefinitely. I am, however, seriously considering Apixiban. It's the one that claims to be the lowest for a bleed. Since it now has a reversal (but not yet in Canada) it may
be a sound answer to Warfarin. Who knows at this early stage. It's only been 6 or 7 years since its approval.
Thank you. There's not a lot of research on this. I did find a few articles last night. Most of them finish up by saying more work needs to be done in this area! I hope you are staying well.
Thank you kindly. I'm 73 and staying extremely well, I'm 5'6", 135 pounds and active almost daily. I live in the country in a small cottage on a half acre that I consider my little homestead. I've been here just over a year. The half acre was pretty much an empty palate with an old barn and a couple of other out buildings. In early spring I decided to turn the lean-to section of the barn, which was south facing, into a greenhouse. Although the project seemed daunting at first, I persevered with a crow bar, a 4 pound sledge hammer, and lots of elbow grease. Since the barn was from the early 60's, the boards were brittle and the nails spiral - a nasty combination for dismantling. The walls and ceiling insulation was sawdust/wood-chip combination that is very useful for garden paths and soil building. In my new finished greenhouse I now have 7 raised beds growing tomatoes, sweet potatoes, peppers, and cucumbers. What a satisfying project!
Since taking possession, I have raised 8 other garden beds, mostly 42" X 12'. Last fall I planted 360 garlic cloves, so now have amazing results and an amazing mountain of rocks. My garden is my main passion. Growing one's own food organically and being close to nature in that way is invigorating and health-giving in its own way. "Every day is a work of art in progress".
I live with a lovely little cat that that is my constant companion and follows me around like a dog.
I'm also raising 25 Cornish Cross meat birds that will be 'processed' at the end of July. This entailed building them a cattle-panel chicken tractor that, if you're interested, you can find the plans for at YouTube. I'll have help for the process of killing them and I confess I'm not looking forward to the experience. Since I eat a little organic meat, I philosophize the necessity of killing what I eat. So....here is a question to ponder: if I'm feeling so squeamish about it, is it justified? If not, the answer would be to go vegetarian. Letting others kill animals for you amounts to the same thing; they're still being slaughtered for one's consumption.
In closing I need to admit how lovely it would be to NOT be dependent upon an anticoagulant. Not possible in my case. At least not at present with what is known about Factor V (5) Leiden. A few years ago I decided to try natural anticoagulants: natto, vitamin e, garlic supplements, and a couple of others that I can't remember at the moment. This was against my doctor's advice. Lo! I got into trouble - it resulted in a major embolism from groin to knee. A contrite apology to my doctor, and a wake-up call to do more research before embarking on an experiment that may be life threatening. Which brings me to the language of research papers; hard to decipher for the lay person, but not impossible if one perseveres with help from a search engine.
Good day to you all, and good luck on your journey to better health.
Remember: "You are what you eat". "Let food be your medicine and medicine your food". (If you're fortunate enough to journey to health through nutrition in your diet.)
I know exactly how you feel. I've been on Rivaroxiban for 2 years and my periods are horrendous. Spoke to my GP and his only suggestion was the coil. I'm 50 and really don't want to go down that road so basically I'm hoping for the menopause to hurry up! I did become anaemic so keep an eye on how you're feeling and get your bloods checked. Unfortunately that's the only advice I can give you but try not to panic. First few days are usually the worst but keep an eye on how your feeling
Thanks Eirlys. I hgave an appointment with a new gynecologist on July 15. Hoping he can come up worh a workable solution. I'm 51 so like you i don't want a coil.
I've started back on ths iron tablets too & eating a lot of steak.
I'll let you know how I get on & if he has a feasible solution.
Hi I’ve been i. Rivaroaxaban for 6 weeks and my heavy period started a week later I ended up in s and e losing blood every half hour changing and soiling with talon and two pads in . Just going straight through. and now I’ve been in for 5 weeks. Leading to one blood transfusion and two iron iv.My gp referred me to a private hospital hospital saw a gyaena I’m 44 not wanting any children. I was offered mire a coil but didn’t want an external object affecting my hormones so the consultant asked if iWorks consider an endometrial ablation or hysterectomy . The latter would not be ideal as I’m only on blood thinners for short time. Nd my clot in my thigh had a way to go in shrinking.
So the ablation is less invasive . It’s the destruction of lining if your womb with s hysteresvope heated object.. I had it yesterday. I’ve had light spotting . I had to stop my rivaroaxaban for 48 hours pre op . Just started back in today . Let’s hope the bleeding doesn’t start up again. I will keep you posted.
How are things going for you now? You've had a horrific time with it all 😣
I saw a gynecologist last week. He offered (in this order!) a hysterectomy, mirena or an ablation. I did have a scan done & he thinks I only have 'about 1 more period to go'. Unfortunately I didn't ask how he could tell!
I'm not really keen on any options, particularly 1 & 2.
Period just started yesterday, so the plan is to 'see how it goes'. Cardiologist is happy for me to stop the xarelto for a few days if the bleeding is excessive.
All in all not a great outcome.
Like you, my cardiilogist didn't have any ideas for me but at least he looked disappointed with the options offered.
There must be a better solution. It's not like the manufacturers aren't aware of it!
I was diagnosed 4 weeks ago with DVT in my femoral artery . I was given rivaroaxaban which helped the first week to reduce any pain in my thigh . I am 44 years old. I’m anaeminc . I am also taking iron tablets 3 times a day and also taking statins on a night for hereditary high chloestral.
I have had a blood clotting disorder always found that when ever I had periods I would always have heavy clots. I don’t drink enough water and low iron would have contributed to my DVT.
I started my period 3 weeks ago after a few days I ended up in a and e due to the pain and amount of blood I was losing changing tampons and clothing every half hour with accidents . It made it impossible to go to work. I was given utovlan to control the bleeding . I was told it would stop but it has not. It slowed it down but I’m still changing tampons and pads every two hours.
By the end of second week of bleeding it looked as if the bleeding was going to stop as I got nothing for one day. But oh no I then took a rivaroaxaban and it starts up again every day. So I know I’m not on my menses I just bleeding abnormally every day when I take the tablet .
Even though I have come back to work the quality of my life has deteriorated.
The cardiologist at the thrombosis clinic didn’t seem to know much about this side effect on rivaroaxaban which I’m finding disappointing because when you google the medication. It’s obvious the problem is wider. He mentioned hysterectomy or an IUD might help?! Gave me blood and iron IV
I went back to my go this week and he has referred me to a private gaeanocology hospital .
Now waiting but it’s upsetting . I have another IRON top up .
So I’ve had the ablation. No bleeding first few days just brown discharge if that. One week on and this morning started with what looks like first day of period bleeding fresh blood . Went to see gyaena to make sure it’s not an infection. Was given augmentin whilst on the rivaroaxaban for the clot.
He thinks that after sblation you still have a period cycle and it could just be a normal period. Watch this space if it finishes next week that may be a relief. If it gurdntvand bleeding continues then it will mean the ablation has not worked .
I’m then going back to gp and I will ask them to change my type of blood thinner.
Hi Singmysong, I wonder how you got on? Would you be able to offer me any advice please? I am experiencing very frequent and heavy menstrual bleeds whilst on Rivaroxyban. It's ruining my life. Thanks xx
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