Developing: This looks like a very... - Anticoagulation S...

Anticoagulation Support

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EDBrae profile image
10 Replies

This looks like a very interesting development. If they need someone to try it out on then I'd be game

birmingham.ac.uk/news/lates...

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EDBrae profile image
EDBrae
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Nancylm2015 profile image
Nancylm2015

I would be so happy if I could get off of warfarin. I am having a hell of a time moderating my diet/INR and trying to lose the 20lbs of weight that I have gained over the last year with my injury/DVT combo. I am so unhappy, depressed and frustrated with consistently attending lab screenings and worrying about every little thing I eat every day. I know it's needless to complain.. but I share in your grief over this. I would go to Alabama---sure--I mean it's not the ritziest of US locations LOL--- but yeah, worth the trial I think. I hope they find it viable in the near future... before I deplete my bone density due to this drug (Coumadin). Thank you for sharing this link! I hope you are holding up well. Best - Nancy

in reply to Nancylm2015

No it's not needless to complain as its obviously upsetting for you feeling like you are chained to hospital clinics with warfarin and it's so bloody unfair as well which is what upsets you more than the condition in itself.

Nancylm2015 profile image
Nancylm2015 in reply to

Jo thank you for your encouragement and consideration--- means a lot to me right now to hear this from you.

in reply to Nancylm2015

That's no problem. I found the psychological side of things harder to cope with than the physical side. Glad I could be of help.

Something that seems silly and trivial to one person isn't to someone else. I am terrified of medical things and had been told by a nurse how it was something I needed to get over. One of my friends said how what that nurse had told me was a disgrace and how you don't just get over phobias easily.

I will get over it when I am good and ready though.

EDBrae profile image
EDBrae in reply to Nancylm2015

Sorry to hear this. Its a tough time, and you've been through a tough time. What may cheer you is that people are trying to find better alternatives... although I know no one wants to be in this situation. I had the heartache of having to watch fathers do Judo with their sons/daughters tonight with the knowledge that I won't be able to do that.

Not sure what the situation is like the States with medication, have you tired any of the others? Are you able? Pradaxa has a antidote

Nancylm2015 profile image
Nancylm2015 in reply to EDBrae

HI, no I haven't tried Elliquis or Pradaxa... bc the docs here warned me that with a DVT, Coumadin/warfarin is the safest bet. I also read that getting off of Coumadin makes you 4 times more likely to clot, so I'm worried to change meds since it's only been 4 months since my DVT (February).

I'm sorry that you're missing moments with your daughter/children... it's very difficult to have this issue when you've got young kids, I can relate. I feel like I've miss my two sons' entire year of their lives. I had plans for body combat classes and spinning classes with my oldest son on Tuesdays and Fridays this past school year (he's in high school now), but that was cancelled. No annual family vacation trip this year, no travel plans for this summer either--- it's put a halt on our usual lives. I am also extremely tired all the time while on Coumadin--- idk if it's the med, depression, weight gain, lack of vitamins, or all of the above. I feel like I need to be rebooted! UGH LOL

EDBrae profile image
EDBrae in reply to Nancylm2015

not sure about the safest bet, as statically it would suggest they all do the same with the same results. There are only slight differences, the main thing with the new drugs is that you are anticoagulanted straight away without the fuss of a therapeutic range. Eating isnt an issue with the newer drugs.

Yeh the whole situation sucks... I'm determined to make sure the pills fit my life and not the other way round. I'm not living like an old man yet!!

Nancylm2015 profile image
Nancylm2015 in reply to EDBrae

HA! I know the feeling---- I feel like I went from feeling 20 years old---directly to 90! I hate going to the Coumadin clinic for me INR---- I am nearly 30 years younger than everyone there. It's depressing, yeah.

How's things with you and I hope you feel better now.

I find that I grow to accept things with time and I'm sure you will be fine.

EDBrae profile image
EDBrae

Well it looks like I most definitely have a genetic blood condition. Its frustrating but I can't do anything about it. I found this article cause hopefully one day there well be better alternatives to what we have currently. Hopefully one day that will mean less risk for everyone but effective in the need to anti-coagulate.