Coming out of a DVT but what’s next?

If your doctors have recommended you have a full CT scan, then have it! They know what they are talking about, and yes, one does go radioactive for a little while, but not enough to matter. They don't do unnecessary scans, though, for that very reason.

I had a DVT which resulted in bilateral pulmonary embolism. I had a CT scan and they found an incidental "lump" on my adrenal gland. Its not affecting my health now (43) but they can deal with it before (in my docs words) it begins to affect my health - so its well worth doing if its being offered.

The cause of my DVT was also unknown and have been put on rivaroxaban for life - may be worth discussing long term too if you've been told your at higher risk of a repeat.

Hi andkin how are you , iv also got blood clots on my lungs I was put on apixiban to start with the dr said 3 months then they'd be gone but he later decided 5 months as I was still very unwell anyway I got a VQ scan and that is how they were discovered last July , my respiratory dr sent me for another VQ scan in Jan this year and they found I had even more clots in my lungs . For some reason unknown to me the dr didn't believe they were clots he said he was sure results were wrong so he got a second opinion and again was told def clots so I was to stay on apixiban until I see him in July. I got a letter saying he has arranged for me to get another VQ scan and a CT scan befor I see him again. I'm told not to worry about the radiation as it's only small amounts they use , I'm 47 I have copd and other health problems but they also have no clue what's causing the clots but I will be going for both scans as I'd really like them to get to the bottom of this. For me I feel the apixiban don't work iv had no improvement in breathing or pain also as iv said I now went from approx 14 clots to 20 , I hope the scans give the respiratory dr a better picture of what's happening in my body. In my opinion I think you should get the scan done you just don't know what they could pick up on that may help you but it's your choice. When I got the first VQ scan done the dr told me he did not expect me to have blood clots and was very surprised so if he hadn't arranged it I would not know about them. I am told by my gp I'll be on apixiban or something similar now for life . I wish you well and it's really great you can do so many steps each day well done ! Keep us posted on how things go for you very best of luck 🌹

Hi, mine was unprovoked, I am 58 female and in UK, I had it December 2016 behind knee up halfway up thigh, cancer was mentioned by the consultant, I dad all the scans as per NHS NICE recommendations, nothing found. I believe it was caused by long car journeys from one end of UK to the other over a short period on the University trek with my son. Just been told today that I have to stay on edoxoban for life, absolutely gutted. Scared to be on them, scared to come off. I have not cut myself since I have been on them, but as there is no antidote, being alone and having an accident is absolutely terrifying, no does anyone cope being on them?

Hi Tareena, interesting that this is similar - did you do the thrombophilia test and the CT scans? Good that they didn’t find anything sinister. I’m no doctor but I’m wondering if they worry about any clots in the thigh moving into a PE which is why they have recommended the medication. Would be interesting to hear of anyone who has been prescribed the same drug