I am sharing this in case it gives anyone else an idea.
I just paid for a private ultrasound/assessment of my veins with a Consultant ( £250). Having looked at my veins, it appears at some point a vein was blocked and it did a work around. This almost certainly happened when I had Phlebitis, 10 years ago. He is sure that both my episodes of P.E. will have come from my vein damage and that currently, there is further likelihood of clotting. It does make me wonder how long a clot can be sitting in your veins before it goes walkabout.
I had the opportunity to get this vein dealt with 5 years ago but then moved back to mainland UK where my GP's have not wanted to even consider doing anything about my veins, even after my first DVT. The Consultant said that I might have been spared the DVT/PE episodes had it been done
There is hope however, as long as my deep veins aren't damaged that he can neutralise the offending vein with Laser and then I may be able to get off the blood thinners. My GP will be getting a letter shortly and I wonder if he will say that it could be done on the NHS?
Best wishes to all