Active Surveillance Helpful Hints and... - Active Surveillan...

Active Surveillance - Prostate Cancer

Active Surveillance Helpful Hints and Suggestions

Darryl
DarrylAdministrator

Please reply with your helpful hints and suggestions for 1. figuring out when to do PSA tests and scans and new biopsies and 2. maintaining your health and happiness with diet, exercise or anything else that is helpful for you.

It's OK to re-post replies you previously made. I want this to be comprehensive. I think it will be great to have a full community response to this...I'll pin the post as a resource for us all. Thanks!

11 Replies
oldestnewest

I think the proper intervals for biopsies remain a mystery. I started out in 2010 with annual biopsies. I had a Gleason 6 in a single core in late 2010 abd it has never been seen again. That was before I realized the risks of biopsies, such as sepsis, and how useless blind biopsies were (some experts compare them to coin tosses). Eventually, my urologist felt comfortable with my prostate and how it worked, even as it reached a PSA of nearly 9. He switched me to biopsies every three years. I have had one biopsy in the last five years and am due for an evaluation next month. Dr. Klotz in Toronto is now recommending biopsies every four to five years for low-risk patients. Some docs in the US suggest these intervals are based on the Canadian single-payor system trying to conserve resources. Others say long biopsy vacations wouldn't fly in the US because urologists would fear malpractice suits if they skipped biopsies and advanced cancers showed up in the interval. If I have another PSA of high 4 or lower, I'd like to avoid the biopsy. I might consider a high-rez ultrasound.

Hi Darryl: I am on AS since diagnosis at age 79 - now 83. GS = 3+3 = 6(1 of 18 cores). Done at age 79. Last biopsy 1 1/2 years ago 18 cores all negative. Having PSA every 6 months and has been running a steady 1.0. This past Nov. Dr. had me take a contrasted MRI. No lesions detected. I am in quandrery as to best way to keep track of the disease. I cannot make any recommendations other than keep doing the PSA - that's what I rely on at this time but in a local support group where almost are in the advanced stage - scarry!!

Bud Armstrong - Sun City West, AZ

AS2010
AS2010
in reply to aztbud54

You raise an interesting question, Bud. I wonder once you a diagnosed with low-risk prostate cancer if you are on the PSA, biopsy, mpMRI train until you die. Colonoscopies are recommended until your late 70s. Is there a cut-off for low-risk prostate cancer? As to support groups...I find that they can be dominated by men with advanced PCa. Are you aware of a couple live virtual groups dedicated to low-risk PCa?

Bud, you also mention a PSA of 1. That seems very low. Have you undergone aggressive treatment such as chemo or radiation?

aztbud54
aztbud54
in reply to AS2010

I have not seen any data on any definite recommended cutoff age for low risk cancer. But this forum is an excellent source of information that I will certainly keep abreast as studies are reported. To answer your question regards the PSA 1.0, I have not taken any meds.. I have made more concerted effort toward exercise and modified diet(this one is more difficult). Your interest and thought are very much appreciated - THANKS!

HiddenThis reply has been deleted

Darryl im not getting any emails from post like i did when i first joined . do know what could cause this

thanks David King

drking10@comcast.net

Darryl
DarrylAdministrator
in reply to aceace12

Please check your profile settings and also check your browser and spam settings

I am 79 and have been on AS for 4 years. I assume that most,if not all , of us in this age area have at least one other relatively serious medical problem. I know i do. That said, at some age point I dont care a lot what the PSA,DRE,MRI or biopsy slides show because ,according to the Sloan Kettering life expectancy questionnaire, the chance of something other than Prostate Cancer getting me is very very high compared to PC. I want to live as long as i possibly can if it is in a state where i have some quality of life. I know each of us defines what constitutes quality of live differently. Just another of many reasons that there is no one best path of AS, Treatment etc etc for PC patients. My PSA has now gone over 12%. I just had a targeted fusion biopsy on July 3rd because of conflicting opinions in re my Dec 2018 3TMRI. Depending on what Johns Hopkins 2nd op folks say i will make a long term decision about my future path, but barring a major negative change in my key numbers, especially Cancer stage and whether ot not the disease is still contained within my prostate, I will probably stay on some sort of spread out AS and forego treatment even though my Urol finally recommended i start treatment in February of this year....i should say my EX Urol , without my ever having had any but 2 blind biopsies 4 and 3 years ago.

surfspot
surfspot
in reply to kayak212

What Gleason score did you get and what was the progression of PSA?

3+3=6..blind biopsy..2015...3+4=7..blind biopsy 2016..Johns Hopkins 2nd op adjusted it back to 3+3=6 where it has been ever since. PSA started at 6.47 in July 2015 and gradually increased to 12.95% in May of this year.

You may also like...