HI, I'M BACK!
Sukie427 in My MSAA Community 2 years ago
Hi, everyone. I have been off-line for a few weeks because the nerve pain I had been experiencing took over my life. Every time that someo...
Let's talk steroids
Jesmcd2 in My MSAA Community 2 years ago
My 1st infusion was this past Memorial Day wkend. When my neorolgost called and told me that l needed to have it done in the emergency rm, ...
ktaylor8899 in My MSAA Community 2 months ago
So I am on my next level of Rebif which is almost double what I have been taking the last two weeks. Wish me luck, I just got use to the 8...
ktaylor8899 in My MSAA Community 8 days ago
So here is my update, starting my next month of Rebif- side effects are getting better. Mainly joint stiffness and headaches the 24 hours af...
jimeka in My MSAA Community a year ago
They say it's lucky if a bird makes a deposit on you? Could that be a cause for ms? Blessings Jimeka 🦋 🌈
Swelling around the eyes
MarciaEileen in Vasculitis UK 8 months ago
For about 2 weeks, I've had swelling and purple discoloration under my eyes. It's as if the usual dark circles you might have are now s...
Better things to come
jimeka in My MSAA Community a year agoPOPULAR
I have had a very trying week. Firstly my internet, zilch and very temperamental. Secondly my husband decided to treat me to a surprise lunc...
MS and Reclast?
kymrob91457 in My MSAA Community 3 months ago
Hi. My name is Kym. I've had MS for 32 years, and I have really bad osteoporosis. My bone Dr. wants me to start Reclast. But, the more I rea...
Shortness of breath as a symptom of MS?
erash in My MSAA Community 2 years ago
i have developed shortness of breath with exertion for the past 6+ weeks. Feels like on occasion I just can't get a full deep breath. This i...
HELLO AGAIN EVERYONE
Sukie427 in My MSAA Community a year ago
I know that I haven't posted in a long time, but things have been crazy. On March 7 my husband had a full left knee replacement and I stay...
Experience with UHC
lcrosby3 in My MSAA Community 8 months ago
Good morning! Husbands insurance company changing again. They are going to United Health Care. I'm on Ocrevus infusions. Does anyone have an...
What type(s) of healthcare professional are you currently consulting as part of your management of MS? (select all that apply)
johnMSAA in My MSAA Community 2 months agoPOPULAR
Shelly36 in My MSAA Community 2 years ago
Has anyone ever taken Methyl Predrisolone Sol? It's an injectable dialy steroid. A mom at my daughters school told me about ...
Searching better health
Gcann61 in My MSAA Community 5 months ago
I have been taking tecfidera 2 yrs and did not work as a have another lesion in brain and relapse, effecting my right side like a stroke. St...
It's me again.
30048 in PMRGCAuk a year ago
Am getting no help as to why I am not absorbing the prednisone. \" Just don't know \". I am up to 25 mgs basically on my own math. If I was...
Hi I was diagnosed last month- spent a week in the hospital on IV steroids. Went home ok and today (a month later) my legs are burning hot I...
AND NOW ANOTHER RELAPSE
Sukie427 in My MSAA Community 4 months agoPOPULAR
As you all might have noticed (or not) I had to quit posting again. I had a relapse last week--not just a flare, but a real relapse that re...
Sukie427 in My MSAA Community 2 years agoPOPULAR
A friend of mine sent me this. I think it fits the bill! Enjoy! Sukie427
Inner Peace during election time
I'm passing this on because it wo...
Mrsrkendall in NRAS a year ago
So I have Uveitis with a non specified auto immune disease. They have literally tested for everything that it can possibly he and even some ...
Ankara in PMRGCAuk 9 months agoPOPULAR
Well on reading the other posts I do not seem the only person to have had different diagnosis. At times I have wondered whether in fact my i...
Ok I am Done!
ktaylor8899 in My MSAA Community a month agoPOPULAR
I cant keep taking these rebif injections— I see my neurologist on tues for a check up. (Not the Ms specialist- I am waiting for the referra...
How has MS affected your career?
SimoneHU in My MSAA Community 3 years agoPOPULAR
Transcript: Ask Me Anything with Dr. Annette Okai
EmilyM375 in My MSAA Community 6 months agoPOPULAR
Welcome, My MSAA Community, to our Ask Me Anything with Dr. Annette Okai! We are excited to have Dr. Okai joining us to answer YOUR questio...
I'm New Here
sandon6466 in My MSAA Community 8 months ago
Just wanted to interduce myself . I Was diagnosed with MS 4 years ago. I started out on Copaxone , but about 9 months ago , I had to change ...
Mrsrkendall in NRAS a year agoPOPULAR
So I took my fourth injection yesterday. I will say this one hit me hard. I don't know if it's the increased dose or if i over did this week...
Ocrevous and respiratory infection risk
ZoomJoeT in My MSAA Community 6 months agoPOPULAR
Almost a year ago, the FDA gave its approval to the use of Ocrevous. Many, many people have, and are using this MS treatment (?). Many medi...
More answers needed please
jkdavid99 in My MSAA Community 10 months agoPOPULAR
Ok due to my double vision my dr has ordered a 3 days of steroids. I.am terrified , what does it consist of? Will it make me.sick, throw u...
Doubled51 in My MSAA Community 7 months agoPOPULAR
Y’all know that I had my iv steroids last weekend but im disappointed that I havent had any improvement. If anything my fatigue walking and ...
ACCESS TO EXPENSIVE MS TREATMENTS
I am new to this site, so I would like to introduce myself. I am a retired lawyer with Relapsing MS. I was diagnosed 6 years ago. My curr...
Copaxone to Ocrevus?
cgladdin in My MSAA Community a year agoPOPULAR
I am really struggling with the decision on whether to switch treatment to Ocrevus. I have been on Copaxone since 2001 and have been doing ...
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