Update- showing articles to rheumy
I was so scared from my experience of getting fired that I copied a pile of articles, a virtual wall of paper to protect me! I told her about...
Monotherapy with Actemra for GCA
I didn't write about my GCA journey for a while as the whole process was rather confusing and difficult to understand. But now it's time to s...
Anyone outside the USA on actemra yet? Looking for reactions to the drug here in USA and abroad. Heard anything PMRGCApro?
I want to mention the side effects which I found after the third shot which is more muscle fatigue than the steroid myopathy rather debilitat...
I was so depressed on steroids and I just could not handle all the side effects. I have noticed just one side effect with the Actemra....
Day two of raised dose prednisone
I did wake up very sore but so far no headache and pain has eased up. Definitely was in a flare because of coming off the Actemra....
A baffling virus
What an unbelievable month of pain. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles....
Clinic Note: GCA patient is completely non compliant with my excellent treatment plan.
" This really bothers me because I feel I've been labeled a royal pain in the arse: stubbornly, ignorantly refusing the treatment he could us...
Advice needed- is this normal- should I ride it out longer?
After 5 days I was upped to 60 mg of prednisone due to headache but other symptoms had resolved. Saw Rheumatologist on September 26 she confi...
Severe headache for past two days
Dear friends, I have had an increasing severity in headaches the past 2 days. The pain has been in the temple areas, pain and pressure over l...
Steroids/Actemra/Addison’s = GCA
Recently went to every Other week and blood markers still down no change. However the nasty thing is that I have no adrenal function as a res...
Reduce or not
Started Prolia for bones three weeks ago and the side effects are achy body and lowEr abdominal pain with gas and bloating. Can't tell if the...
Biologics and appetite
The curious thing is my diet over the last few years has been awful as all the healthy foods I liked turned my stomach. I thought I'd just go...
Long overdue update on Moms Giant Cell
I want to start by saying that as I thought, most, if not all of her worst symptoms were caused by the large doses of Prednisone. I had praye...
Treatment of Systemic Onset JIA with Actemra (Tocilizumab)
Though the symptoms started few days before diagnosis, pediatric rheumatologist started treatment of SoJIA after ruling out septic arthritis....
Worst Pleurisy of my lifetime - Does anyone have any wisdom for getting through this?
No fever, pneumonia or obvious infection. Yesterday was very uncomfortable but by evening I was having some moderate relief from increased pr...
I took my first injection on December 21, 2017 for GCA and felt already much less fatigued the next morning. After six days my chronic cough ...
A headache one day a week I was handling. My body was itching all over and I came out in a rash....
Due to relapses , I have gone back up to currently 40 mg due to blurred vision as well as other symptoms related to GCA. I suffer from extrem...
Some tiredness yet ... And a little dizziness once in awhile....
Vasculitis Relaspse after Injury?
I had often had cutaneous vasulitis concentrated on my lower legs during my childhood . Often had painful ulsers on both legs which healed on...
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