Sour sweat odor
I have GCA and the smallest of physical tasks makes me sweat profusely it seems now and my sweat turns to a sour like odor as it dries....
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
For the moment, Prednisone free!
She has weakness in her right leg, but that is being chalked up to the fact that with the GCA and feeling so ill, she was absolutely almost i...
cost of drug
I guess this is going to be considered a rant!!!! After talking to my GP and rheumatologist, from their opinion, I made the decision to try t...
14 months of dosing down my prednisone and at new dose of 4 mgs. Also taking weekly Actemra injection without side effects....
Tapering Pred on Actemra Feeling Bad @4Mg... Normal?
I had been diagnosed with PMR 4 yrs ago at 54 and more recently GCA....
More Prednisone or Less Activity🤔
I am taking Actemra injections and prednisone. I recently flared, so I am back up to 5m daily, but now stable and feel good....
Thinking it was the bulge they did back surgery, pain went away for a couple of days and then was back----now however I really believe it was...
I also take weekly methotrexate and Actemra injections which I don’t think is helping as well as it should but am afraid to start the process...
Actemra and Managing Infections
I have been taking Actemra since June 2018. It allowed me to taper more quickly all through the summer; the Actemra side effects were managea...
Emotional and getting muscle spasms
Hi I was just wondering if when tapering down ( came from 60mg now at 8mg, also am on 162 Actemra weekly ) came down to 8mg last Friday. I am...
temporal arteritis for two years now
I'm a 60 year old woman who is dealing with temporal arteritis for the second time. This time it has been two years now and I'm losing my min...
Will any medication ever help ?
I have been on Methotrexate, Enbrel, Cimzia, Leflunomide and Actemra....
Things were going so well with the Actemra. A headache one day a week I was handling....
Diagnosed with PMR late Febr 2018 & GCA in April--currently taking 50 mg of prednisone daily....
Diagnosed with pmr January 2018 and GCA and osteoporosis March 2018....
Tapering glitch while on Actemra
I was walking to the market this morning when I had to turn back and go home due to severe pain in my hips caused by walking. I lay down for ...
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
3rd injection of ACTEMRA
So far I don’t see any difference in pain level. Noticed small sores in my mouth a lip feels a little swollen has anyone else Experienced thi...
“The system is broken, and all the financial incentives are lined up to keep it broken.”
Actemra - most disturbing. Being considered for GCA medication....
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