temporal arteritis for two years now
I'm a 60 year old woman who is dealing with temporal arteritis for the second time. This time it has been two years now and I'm losing my min...
More Prednisone or Less Activity🤔
I am taking Actemra injections and prednisone. I recently flared, so I am back up to 5m daily, but now stable and feel good....
3rd injection of ACTEMRA
So far I don’t see any difference in pain level. Noticed small sores in my mouth a lip feels a little swollen has anyone else Experienced thi...
Diagnosed with pmr January 2018 and GCA and osteoporosis March 2018....
Actemra Is Now In My Life
Hi everyone, Kentishgirl Girl Here, we I am now on actemra, I'm not happy about it! the possible side effects scare me to death!!...
Anyway I have GCA since November 2017 also started injections in early February Actemra....
Cortisol and adrenals Pro where are you
My cortisol level was 1. Both my endocrinologist and rheumatologist did not seem concerned....
Actemra has been really keeping my pain tolerable, however I needed a crown and was advised to discontinue my weekly shot two weeks prior to ...
Actermra and Pred tapering.
I have just read Jim's post about his wife now on 5mg prednisone and reducing having had Actemra. I am in a similar position having been diag...
Change Health Care to get Actemra?
I was diagnosed with PMR about a year ago, started on 15, up to 20 after three weeks, and down to 8.5 now with one flare @14mg....
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
Diagnosed with PMR late Febr 2018 & GCA in April--currently taking 50 mg of prednisone daily....
Anyone else on Actemra for PMR?
After two and a half years of trying to reduce pred doseage for PRM ( I’m 72 and have osteoporosis ) my rheumatologist got me approved for Ac...
Emotional and getting muscle spasms
Hi I was just wondering if when tapering down ( came from 60mg now at 8mg, also am on 162 Actemra weekly ) came down to 8mg last Friday. I am...
I also take weekly methotrexate and Actemra injections which I don’t think is helping as well as it should but am afraid to start the process...
Weight gain on Tocilizumab / Actemra
Having a terrible time right now with body confidence. Only trying to lose a stone or half a stone....
Thinking it was the bulge they did back surgery, pain went away for a couple of days and then was back----now however I really believe it was...
Any Actemra experience?
I am 58 years young and had PMR for 6 years, going along nicely on 4-5 mg when got diagnosed in May with GCA....
Recovered from Flare, tapering resumes...
Hi Everyone, School is back in session and I am back to working full time. I am so grateful to have had the summer off to recuperate....
Update- showing articles to rheumy
Continuing the story about being dismissed by my rheumy and searching for a better one. I got a referral and saw the new doctor on April 25....
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