Pain in coccyx and lower back
Any suggestions or thoughts if this could be PMR related would be helpful....
Dear friends, I fell on Easter fracturing the tibia and the fibula right above the ankle. I had surgery to stabilize the fractures with a pla...
gca and Actemra
Got a lot of literature from Rhumey and don't think it is approved yet for GCA juyst under study only for RA But heard there is funding, etc,...
I have been trying to write a letter , describing my situation, for weeks. I have not had a great experience with all the drugs they have bee...
Salvation from Pax Labs..
Then when you consider I have responded badly to so many drugs why would this one be any different? The inflammation is clearly out of contro...
0f 2014 on 60 mgs Prednisone for GCA after biopsy, had a flare for four months ago ( April of 2015 ) Finally got down to 14.5 mgs....
Biologics ? When is enough, enough?
Hello everyone, hope all is well. I am currently on a treatment vacation....
To all Warriors with experience ?
To all experienced warriors ! Where do we go from here ?...
GCA and use of actemra iv
Can anyone tell me that is on at actemra how they are making out? Doctor to review it again with me tomorrow....
I don't know if this is from the PMR, fibromyalgia, or sitting for 2 months....
GCA & ANEURYSMS. ..
Hi, Hope all are doing good. I've had GCA PMR 3 years now, I was on preds 3 months then on Actemra 2 yrs 9mos then I got a lung infection & h...
started on enbrel in february had side effects then onto simponi now actemra....
Hi I have taken my 8th injection of actemra on thursday . Since last week seem to be having an allergic reaction to something?...
Reduce or not
I have been on high doses for GCA for a very long time and reducing very slowly....
I've had GCA & PMR for 3 years started off on 60 mg preds, then within 3 months Dr. Reduced preds rapidly & put Me on Actemra infusion once m...
Severe headache for past two days
Dear friends, I have had an increasing severity in headaches the past 2 days. I have GCA/PMR and am presently taking Prednisone 40mg....
try again, I made a mess out of my first try,
I sure messed up my prior post ... I've been on a actemra for 14 months, the pain is gone & my weight is good but I still don't feel like mys...
My labs have been normal for 8 months, I've been on actemra, double dose for 18 mos with no preds, when will I be concidered GCA free? And wh...
Hi Again. Looking for ideas, 3-4 times a month I get a tight, full feeling in my head & kinda foggy brain, nothing matters to Me, don't feel ...
Going on 2 years with GCA, on actemra to keep me off preds. All my labs are good but still don't feel like I did before GCA....
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