Acoustic neuroma? Has anybody Had pai... - Acoustic Neuroma ...

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Acoustic neuroma? Has anybody Had pain or hot feeling in ear

Teddyboy17
Teddyboy17

I’ve had popping ears and slight congestion and on and off for 13 weeks. Also tinnitus not ringing but quiet engine sound. I never wake up with it but usually as day goes on it gets worse . A little vertigo couple of time. Was told possibly Eustachian tube dysfunction and fluid and referred to ENT. However seen consultant and wants me to have brain MRI to rule out cranial lesion. I’ve now googled and got myself in absolute state that it could possibly be acoustic neuroma. I don’t feel I have lost any hearing but ear sometimes feels uncomfortable. Trying to stay positive but I’m full of anxiety.

11 Replies
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Your symptoms sound quite vague. AN is a rare condition and usually one of exclusion so the odds are in your favour.The time to look on the internet is if you have a positive diagnosis or you can cause unnecessary anxiety. I hope you find an explanation for your symptoms.

Ayooshi
Ayooshi
in reply to Bad1

I started off with ear issues. Pain in my ears. Stuffiness. Blocked. A lot of wax. Popping too. I tried warm olive oil and I tried this organic ear drops which helped a lot. Try not to worry it could just be wax build up. Only way you will relieve yourself and know is after an mri scan. But til then try alleviate some of the ear issues with maybe warm oil if your doctor gives u the go ahead too

Teddyboy17
Teddyboy17
in reply to Ayooshi

They looked and no wax. I am hoping it’s fluid but have a bad feeling it’s not good news. Tinnitus not high pitch though gets worse during day but in the last week or so have had periods time no noise but still feel like need pop ears. I’m dreading Scan but know it needs to be fine . What’s your symptoms currently .

Ayooshi
Ayooshi
in reply to Teddyboy17

My symptoms currently are a lot of balance issues, dizziness, nausea, some facial weakness, stuffy and sometimes painful ears. Some tinnitus. Extreme fatigue. Headaches. I don’t know if this is related but bad backache and bladder weakness. Mri is the only way to know for sure, hope u can find out sooner rather than later. I am trying to go down the herbal route of things whilst figuring out what to do. I will try a couple of protocols and see how I feel after a couple of weeks. I know my diet isn’t great atm and so want to do as much as I can to help myself. There’s lots of support here on this forum so any questions or worries ask away! There’s always someone to help x

Ayooshi
Ayooshi
in reply to Teddyboy17

And I have only just been diagnosed with an AN. I knew for a while something was wrong. I had a lot of brain fog and ear issues and memory issues to begin with and new I wasn’t right

Lois_Howell
Lois_Howell
in reply to Ayooshi

I had my AN removed 15 years ago about a month after diagnosis. Correct diagnosis took 6 months and I had ignored symptoms for at least 3 years previously. I'm deaf as my ear drum was sacrificed in order to preserve the trigeminal verve. If your consultant is a butcher who wants to cut your trigeminal nerve you'll have a facial palsy so, if I were you I'd sack him/her and find one who uses the procedure mine used (he was Proff. Ramsden, probably retired now but he was training younger guys. he was/is a God)

Ayooshi
Ayooshi
in reply to Lois_Howell

Thanks so much for the reply, so how would I know if that nerve u talk of CAN be saved? Imagine they say it can’t be because the tumor is so close? Is this the nerve that directly affects the facial palsy? Are there any other nerves that once cut can also affect facial nerves? I am 39 and under the care of the nhs

Hi,

I have an AN and Tinnitus sometimes dizziness and slight balance problems but I have never heard anyone saying their AN has caused popping ears or congestion.

Most people with an AN have hearing problems

Try not to worry

Kind regards

Did your hearing problem start first though before everything.

First thing I noticed was the tinnitus then my hearing on my right side started to go I was eventually sent for an MRI then a second MRI and then was told that I had a AN

Kind regards

go get the MRI. If it is an Acoustic neuroma don't worry, it's operable if it's big enough to need surgery. My AN was 4cm when I eventually got the diagnosis. Yes, the thoughts of brain surgery were scary but, hey, it's not cancer!

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