Symptoms: Hi. I have unilateral high... - Acoustic Neuroma ...

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Symptoms

Rachr1
Rachr1
15 Replies

Hi. I have unilateral high frequency hearing loss and tinnitus. I also get tingling and a strange feeling on the same side.

Waiting for my mri. Has anyone else had similar symptoms and it wasn’t a Tumor? My dad has had three benign brain tumours although none of them linked to ears but I’m a bit paranoid

Thanks

15 Replies
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Kkk7

Hello

Yes I have strange feeling on left side of face from last 1 yr tingling in half tongue and half lips till jaw line...AN removed in 2015 MRI done 3 mth back bt it's clear still I have strange feeling MRi due after 2 yrs

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Rachr1
Rachr1
in reply to Kkk7

Thank you. I am glad your an was removed and you have all clear

I was wondering if the symptoms can be anything else other than an. I also get headaches a lot just lately

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drdeanbellavia

Yes, you probably have an AN and it might be pressing on your facial nerve. Try to get it resolved ASAP .

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Rachr1

Thank you. I am still hopeful it could be something else. I guess I’ll find out soon enough. Would you know if it can make you feel like your grinding your teeth please?

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drdeanbellavia

Grinding teeth is a stress situation and may cause TMJ pain. If so, massage your TMJ muscles starting from your temples and pressing and moving down till you reach your lower jaw. Do this several times. I hope that it helps.

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Rachr1

Thank you. I shall give that a go.

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Kristyll

I think lots of symptoms vary and it’s best to get a diagnosis confirmation from the MRI Before guessing then we are all here for you and you will know what you are dealing with. Good luck x x

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Rachr1
Rachr1
in reply to Kristyll

Thank you. It’s the not knowing. Once I know one way or another I can deal with it. Just need to stop grinding my teeth as that hurts the most. Lots of boiled sweets and an early night planned for today x

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Kristyll

Be kind to yourself worrying is so stressful x

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TripleB

Hi, I started suffering with left sided hearing loss and tinnitus in August and had some accompanying headaches and vertigo and was convinced it was an AN but have since had the MRI scan which has given me the all clear which is a relief so as much as the symptoms sound like an AN try and be positive and wait for the outcome of the scan, like me you may be surprised.

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Rachr1
Rachr1
in reply to TripleB

Thank you. Glad you got the all clear. Did they say what it could be?

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TripleB

They didn't unfortunately, I saw an ENT consultant last week and he just said nothing had changed since my last review a couple of months ago, said they could inject steroids into my inner ear which probably wouldn't make any difference and sent me on my way with a leaflet on hearing loss and tinnitus! I'm scheduled to go back in a couple of months time to see if there has been any improvement but I'm not expecting it to as it has been like this since August and if anything it is getting worse. I shouldn't complain given what people on here have been through or are going through but it is just a bit annoying that they don't seem to be bothered about something which is affecting me quite severely at times and is now causing me problems in work but as I say I shouldn't complain given I was convinced for weeks that I had an AN and was preparing myself for the worst. So keep your spirits up and I hope like me you get a clear scan - good luck.

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Cherilat
Cherilat
in reply to TripleB

Check to see if you have Occipital or trigeminal neuralgia. Both are nerve disorders.

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TripleB
TripleB
in reply to Cherilat

Thanks, I'll look into that.

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Rachr1

Sounds like you’re in for a bigger battle getting a diagnosis tho. Let me know how you get on

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