I had a acoustic neoroma

[Listal70]

I was 23 when I had a brain tumour I’m left with a facial palsy and deaf but I’m still here after 21 years

[Kkk7]

Hello so u still do MRi and is there any regrowth in 21 years I was operated when 26 now I am 30 always wonder being young I had AN does anyone has to this how's life with one ear and palsy I am having same problem

[Listal70 in reply to Kkk7]

Hi there no I don’t having mri anymore I had them for 10 years nothing her back so they just left me alone thank god. I hate being deaf but there’s nothing I can do about it I found the palsy the worst to accept I still struggle now after 21 years.

[Kristyll in reply to Listal70]

Same here years later but still Tinnitus and balance probs on top, but here to tell the tale x

[Freddy1000 in reply to Listal70]

Have you looked into either facial nerve graft or something called gracilis transfer which is something that I am looking into at the moment, I saw a consultant last week and think I will go ahead with it , I hate my palsy and still struggle with it , he shown me photos of recent patient and they look brill I think

[Listal70 in reply to Freddy1000]

Who did u see about nerve graft cause I asked my consultant and he said it wouldn’t work getting a nerve graft cause I had my nerves cut and glued back together

[Freddy1000 in reply to Listal70]

I saw a guy called mr Evriavades in Birmingham Queen EIziabeth , my nerves and facial muscle is tottally had it , I saw a consultant in Nottingham Qmc and he said that it was unlikely that I can have it done , but Birmingham said they can but it would involve taking muscle in either of the ops and grafting a nerve from your good side to the other and can leave bulkiness which is wat I want to avoid , so I am leaning more to the op I mentioned as it’s the same effect with restoring some smile and the other is more ops involved after also the nerve needs 6 month before it can function

[Listal70 in reply to Freddy1000]

Hope it all works well for u good luck x

[Freddy1000 in reply to Listal70]

And you x

[Freddy1000]

Had An at 21yrs old in 1988 , I’m now 52 , i had 2 regrowths since and been removed 1995 and 2005 but I still have it , and have mri scans every 2 yr, I’m due my next one soon, all the usual fall out , palsy and loss of hearing., Balance issues and vertigo and much more , but I’m still here to tell the tale 🙂

[Kristyll]

Likewise x

[Leodo]

My wife had the facial nerve transfer through mr evriviades 15 months ago. Results are good. Gamma knife for the AN was done in September 2017, we go for a 2 year scan this September. Hope all goes well with you both