I had a huge Acoustic Neuroma 29 years ago at the age of 21 which was very touch and go, 15.5 cm in size , the surgeons took most of it out but had to leave a small amount in there as it was to dangerous to remove, since then it has regrown three times to a troublesome size which required removal, every time leaving some in, i was left with right sided deafness and total paralysis of the right side of my face, terrible balance problems, loss of smell/taste on one side , swallowing reflex and eyelid closure problems.
I have since endured numerous facial ops to try and realign the symmetry, a facial sling helped a little but wish i hadn't had that done , also many static facelifts which do help short term but gravity takes hold a couple of month later.
I do suffer mentally with this due to my appearance. others tell me its not bad but its me who has to deal with it .
Thats a little about my situation , and was wondering if any of you out there have had similar illnesses, and what sort of corrective surgeries have been offered to you, i didn't know until recently about facial nerve grafting , not sure if its to late for me given the time span but this procedure seems the best of any and wonder why i have never been informed of this by my medical team, if any of you guys out there can give me any info about this or you have had this done id like to hear from you.
Been nice to read of others experiences and look forward to any replies.