Simthrome not available. (I react badly to warfarin). Have been told rivaroxaban is now licensed. Any experience of this?

Due to repeated P Es with no known cause I have to take anticoagulants for the foreseeable future. Have been very stable on sinthrome for over a year but I now discover there is a serious supply problem. Disaster! Has anyone any advice about or knowledge of rivaroxyban?

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  • Hi Wagnerm

    As you know, Sinthrome belongs to a group of medicines called anticoagulants (blood thinning medicines) and are used to treat and prevent blood clots blocking the blood vessels e.g. deep vein thrombosis (DVT). However, Sinthrome does not dissolve blood clots that have already formed but it may stop the clots from becoming larger and causing more serious problems. I also reacted to warfarin and suffered many years with stomach pains before they realized it was caused by the warfarin and have now requested to go onto Xareito (Rivaroxaban).

    There is plenty of studies about rivaroxaban on the internet and more information and stories about taking rivaroxaban after warfarin will hopefully start to appear in time.

    I now have an appointment on the 7 Feb 13 at Addenbrooks Hospital to discuss the possibility of going onto Xareito (Rivaroxaban).

    I have many questions to ask and would like to hear from anyone else on what would you like to ask about Xareito (Rivaroxaban)?

  • I was told by my consultant your own body breaks down the blood clot rivaoxaban only thins the blood to allow it to flow easily, scans should be available after 6 months on blood thinning treatment, to reassure patients, but I was told this won't happen.

  • HAVE YOU OR YOUR MEDICAL TEAM CONSIDERED PRADAXA I HAVE BEEN ON THIS FOR OVER A YEAR MY HEATH CENTRE HAVE PUT A GOOD NUMBER OF PATIENTS NEWLY ON THIS DRUG AND CHANGED PEOPLE FROM WARFARIN THERE HAS BEEN VERY LITTLE PROBLEMS JUST A FEW BOUTS OF INDIGESTION ONLY DRAW BACK YOU TAKE IT TWICE A DAY I BELIEVE SOME DOCTORS WILL NOT OR ARE UNABLE TO PRESCRIBE DUE TO RELATIVE COST COMPARED TO WARFARIN

  • IF YOU ASK ADDENBROOKS HOSPITAL THE QUESTION KINDLY LET ME KNOW THE ANSWER WISH THERE WAS AN AGREED BEST STATE THE ART TREATMENT BUT ALL EXPERTS SEEM TO HAVE DIFFERENT OPINIONS

  • Unfortunately Pradaxa is not yet licenced for the use in long term prevention of DVT and PE. They have applied for licence but it will probably be some months before it comes through

  • Please look up Apixaban as well as this-you may find it of interest. It is suggested that it has less tendency for causing bleeding, and as far as I know it is available for a while now although you would need to check this out. It is also called Eliquis 2, and made by Bristol Myers Squibb.

  • Actually only rivaroxaban has a licence for DVT and PE treatment in the UK. NICE has also looked at rivroxaban and given its endorsement in DVT treatment.

    The other drugs have no licence for treatment of DVT or PE. Pradxa have completed trials but not applied yet as I have been told and apixabn has no trials yet in DVT and PE. They can only be used in AF. Therefore no doctor will/should give dabigatran (pradaxa) or apixaban for DVT or PE treatment

  • I had a Pulmary embolism after a knee replacement in March and am on rivaoxaban i had a PE 42 years ago after a C section and was on warfarin for a long time, now they say this is a wonder drug and works, I can only hope so, as I have been told I won't be offered another scan, and maybe be on this for life.

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