But he has DVT, he cannot walk and is in severe pain when his legs are not elevated. He also has PE in both lungs. Excuse my capital letters and please forgive me my anger, but I TOLD THEM I SUSPECTED DVT IN NOVEMBER AND THEY IGNORED US TILL HE GOT EVEN MORE SICK AND WAS ADMITTED TO HOSPITAL WHERE PE WAS CONFIRMED. He only got taken seriously end of dec. Sorry. It's just I don't know how much more me and my family can take, let alone my poor dad. I've only just recovered from brain surgery after my neuro refused to see me and I ended up having to have brain surgery after a massive seizure triggered by bleeding. Why don't they listen? I refuse to take it easy, i refuse to stay unjustifiably calm, i refuse to be placated by insubstantial evidence and explanations, I refuse to watch him suffer and do nothing, i refuse to stand by and remain uneducated. I will not leave his side, i will not stop pushing for his best interests, i will not Cease, i will not stop asking questions. I've called everyone I can. I'm organising special transport to hospital. I've called the anticoagulation clinic and confirmed with them that he should remain on the Clexane and established how he can do this safely. The biopsies are for checking his Liver lesions. I have researched so I know they are looking for cancer because cancer can produce chemicals that cause blood clotting. I have called his consultant's secretary and chased him up. I have even spoken to the doctor himself (he confirmed i was correct about the biopsy reasoning). I have called the GP and I sorted a home visit and tried to get his pain managed. But it doesn't half take some pushing, does it? I've learnt how to inject so I can help my dad with his jabs. But what am I supposed to do? They keep saying things like "we don't need to check his other leg for DVT because it'll just be the same treatment anyway. And because his INR was over 10 he can't have the warafarin again until we establish the underlying cause." and "he's on the best possible treatment available." yet nobody seems capable of explaining anything else or answering any of my questions like.. Why can't they monitor him whilst he is on clexane? He's been discharged from the clinic and told to come for a check up in two weeks??.? I know they 'don't test INR or monitor people on Clexane' but meanwhile he is deteriorating. And getting new leg pains. surely they should be checking his INR? And i know there are tests available for checking people on clexane, its just they only do it with high risk patients. How is my dad not high risk? If I'm wrong I will happily be corrected.. But for goodness sake, why can't they explain? I can't bear to see him suffer. I wish I'd trained to be a doctor. Sorry for the rant. I just don't know where to go, what to do or how to help him. I've called every support line I can find, have emailed specialists and I haven't left his side. But I'm tired and scared and I don't want him to die. And if he does, i want him to be pain free and well cared for.
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