I've had a DVT some years ago and bi lateral PEs nearly two years ago now. It's been a very long haul of feeling terrible , frustrated too at not recovering fast enough for me! I'm usually very active and jolly. This wiped me out to a breathless , slow moving person I didn't / don't want to be. Getting the correct treatment at an NHS hospital was a source of stress , some NHS hospitals and staff should in my opinion not be allowed out near unwell people . After a combination of my partner wheeling me out of said terrible institution and driving me to safety down the MI to a private hospital for 6 days ( PPP) I survived and went on to battle the local NHS afterwards . It's been a total nightmare , but eventually after much persistence I saw a PROPER haematologist to carry on anti goagulation. Not Warfarin , Riveroxaban . Warfarin is cheap for NHS but totally outmoded to most lifestyles . Nothing is perfect though . There are many things many Drs/ consultants don't know too. I rely on my intuition and was taught to be vocal ! I would advise all in the same boat to follow suit. Fatigue is a mayor annoyance for myself, I'm hoping as time passes this will also.
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