What is APS?

[gizmomaven]

I joined this website because I have just started to take Warfarin and it seems all the correspondents keep referring to APS whatever that is and wonder whether I am in the right place

[AnneTS]

There is an excellent Hughes Syndrome Health Unlocked Community you can take a look at or just go to the Hughes website. In a nutshell APS is antiphospholipid syndrome and commonly referred to as "sticky blood". Diagnosis is made through numerous tests (mainly blood) and there is a Lupus and a non-Lupus origin. You can get full information of symptoms from the site. There are many!!! Not everyone has the same ones or as many. Like any medical condition APS is something you live with and adapt your life to. A rheumatologist or Haemotologist can assist with diagnosis and treatment. Query genetic component and whether any family members may have had or have the syndrome. Anne

[moo196]

Hi

I don't have APS but noticed that a lot of people on here have.

I have to take warfarin for a CVST - blood clot on the brain - and thought it might be nice to see how others on long term warfarin are fareing - I'm also a member of the headway section as this was what I needed most help with initially

[AnneTS in reply to moo196]

I've been on it 29 years and still going strong. It is a life-saver for those of us with blood clotting problems. I self-test and find it impinge very little on my life. It can be a bit scary when you first start using it if your blood is unstable but you soon get used to it.