Only 20 years of age.
Each new medication separately following on from each other.
20th birthday in hospital semi conscious with the nurses remarking how much he sleeps.
Me telling them that is not natural or normal them saying but he told us he sleeps a lot.
Not a happy mum here.
Will try to be as short as possible.
Son said leg was sore.
He went to GP on Friday (July 2014) GP said come back monday if not better.
We thought he was ok as GP saw nothing wrong.
We left him home alone went on a 100 mile trip overnight.
Son phoned, said Ambulance on way to him as he had passed out.
Ambulance took forever to arrive - nothing urgent about a male teenager, no hurry.
Admitted to local country hospital.
Kept in General medical observation ward with suspected clot in leg.
Admitted 5th July discharged to other hospital 13th July
We could see he was in trouble but staff insisted he was sleeping (sort of lazy teenager - so lazy he got a clot from lack of movement - yes, this was suggested)
Leg scanned but no one in any hurry to do anything.
I think he had injections of warfarin into the stomach at this point.
Eventually told he needed urgently moved to bigger hospital that performs Liceraine.
Not moved due to not enough staff in next hospital as it was Bank holidays 2 days in a row.
Got moved to have treatment 2 days later.
Staff tried to make me feel I should be grovelling as the anaesthetist had to come in on a Bank Holiday.
Everyone ready to go do their bit but doctor comes over after a few hours and apologises.
No one had booked the one to one nurse he needed so everyone going home treatment next day (July 2014)
Liceraine treatment begins, son in agony. No one would talk to me.
Any time I asked questions I was told to ask my son as he had everything explained to him.
Scared 20 year old in agony and on morphine was making no sense about anything.
I told staff that they said he was a very intelligent person.
** After a few days son can no longer take the pain and tells me what he said the doctors had told him.
He tells me he had the treatment stopped for a few hours and would restart it when he was feeling better, he just wanted a break from the pain.
A few hours later we ask to speak to the doctor.
Son says he will restart the treatment.
doctor says that is not possible as once the treatment stops thats it not started again.
Son very confused, I tell the doctor what son had told me, doctor says thats all wrong where did he get those ideas.
I reminded him son was on morphine and in agony and scared and asked why no one would listen to me.
Licerarine stopped son very upset.
Sent home a few days later and onto meds as in title.
Specialist after discharge said clot can only be broken up within 14 days - I am wondering that I confuse that information.
Discharged from all hospitals etc now.
Going to see GP soon as we are completely in the dark, no one checking anything seems wrong.
Last saw specialist in Jan 2015 no other medical people seen.
I dont know anything is this good, fantastic or poor treatment
How would you feel on these meds are they good?
will the clot break up more.
It was from mid thigh to waist.
Genetic tests were done but nothing found.
Recently his 30 year old female cousin has had a clot so genetic testing being asked for her.
** This and the delay in moving hospitals and one more day delay in starting treatment then it ending due to a misunderstanding really annoys me, would the clot be much reduced, any way to tell had licerine started sooner and kept going.
Thank you, sorry I did try to make it short.