Hi, I have had Bronchiectasis and asthma for a number of years and I am also registered disabled with limited mobility. On 19th December 2014 I had a nasty chest infection and several courses of antibiotics and steroids later I developed a pain in the centre of my chest through to my back. After 3 days of extremely painful legs. (Possible DVT) At first I thought the chest pain would go away but as the time went it become difficult to breath and my husband called and ambulance. After the ambulance crew found that my ECG showed a lack of oxygen to the heart I was rushed to the Resucitation unit at a hospital that dealt with cardiovascular problems. Their care and treatment was excellent and after a CT scan in the early hours of the morning I was diagnosed with multiple Pulmonary Embolisms in both lungs. I spent the next 8 days in hospital on oxygen and various drugs and was told that I would have to take Rivaroxaban for life with no exceptions. I was also told that because of the amount of embolisms in each lung I was extremely lucky to be alive. Sobering thought and very scary. I took 15mg Rivaroxaban twice a day for 3 weeks and then that changed to 20mg once a day, which is the usual dose. On the 15mg twice a day I had no real side effects from the drug but once I changed to 20mg once a day my body began to itch and at night it is intense. I have to wipe myself down with cold water 4 or 5 times during the night to relieve the irritation. I am waiting for the consultant to get back to me to tell me if there is anything I can do to help the problem. It is one of the known side effects and I was wondering if anyone else has had this problem and if they did have they found a solution? I did find that whilst I was in hospital there is help but once you are in the community there is a sense of being vulnerable and no one to turn to for help, although I have a good GP so I suppose I am lucky in that. However when I get a chest pain or shortness of breath when I am talkin or pains in my legs I do wonder what exactly is going on and feel a need for reassurance. I am sure I am not on my own with this issue normally I am quite a positive person but this has shaken my confidence.
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