Dvt/ extensive clotting

I'm a realitively healthy 21year old who's diet could be better but was diagnost with a dvt in my right leg after it had swelled and mild color change . How ever I didn't have just on clot or even 3 or 4 I had a massive almost solid clot from my ankle up to my waist and then from my waist up to just under my heart I had more clots. I was sent in for surgery and had most of my major clots removed. I was discharged and have been home abt a week but my foot and ankle remain swollen and I can't put any waight on my right leg I can't hardly move my right foot. I was on kumadin and lovinox in the hospital at first but my doc said it wasn't working and my clots at the time had gotten worse now I'm on xirolto and I'm just trying to walk again. I also have a P.E. so there is that too. Was also diagnosed with factor V leiden. Any tips on trying to walk or get the swelling down? Ps sorry for any spelling errors math was always my best lol.

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  • Hi gosh you have been through it haven't you, have you got Hughes syndrome too, it is not always tested you can find out more on the Hughes web site on health unlocked

    To help with swelling make sure you keep your leg up when sitting also perhaps physiotherapy may help,

    If you have Hughes syndrome the warfarin, INR level works best at around 3.5 ? Why it didn't work for you

    Check out the site as my brain doesn't work most of the time.

    Good luck hope it improves soon, still early days though.

    I was better at maths too

  • Sorry I should have added, but I expect you have already have discussed things with your Doctor

  • Very sorry to hear about your problems. Yes, exercise is potentially useful, including physio and leg elevation - above the heart level, if possible, is best. I have had a couple of blood clots in my right leg in the past year, both treated with brief periods of Xarelto (I declined Warfarin because of the need for constant blood tests for INR rating) I wear a compression stocking to reduce swelling. I have found Haddenham the best although because they are the strongest they are difficult to get on and off. All these suggestions should of course be discussed with your doctors to ensure that they are suitable for you. Best of luck!

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