Research project - the impact of having experienced a blood clot

The Life After Thrombosis Project is being run by the University of Swansea and is a study designed to identify the emotional and psychological consequences of having experienced a thrombosis. It asks about how the patient felt at the time they had their clot, how they feel now, and their beliefs and expectations concerning their health and any treatment they have received/ are receiving.

The study is the first of its kind, and it is hoped that the results, along with interviews conducted with people who have had a clot will inform our understanding of how people cope in the months and years following the event, and help develop a self-help intervention that may be of benefit to people who have a clot in the future.

The questionnaire is anonymous and should take around 20 minutes to complete.

3 Replies

  • Hi have just done this and found it very interesting Julia x

  • My DVT (Jan 2013) was in the left sub-clavian vein (arm not leg) so there's not a category for that/ me in the Swansea survey.

    Highly unusual apparently in that I was already on Warfarin (for AF). However, the pacemaker fitted in 2011 (my AF had evolved to include periods of 3 sec + beat intervals - it doesn't add to physical wellbeing!) was suspected to be a contributory cause (e.g. pacemaker is a foreign body, body tries to protect. The clotting was around the wire in the vein!). I was not critically ill and main outcome was INR target raised to 3.5 from 2.5. So far so good!

  • ,My DVT was the best thing that ever happened to me. I was seen by a Doctor the day before who failed to diagnose a DVT until the next day as my rt leg was totally swollen , I was then advised to go to the Hospital as soon as possible.

    I was started on Heparin and while I was there they realised my baby had stopped growing, after five weeks bed rest, I had an emergency c section, .

    Our son Christopher was born on his great grandmothers birthday, weighing just 1lb14oz (867gms) size of baby of 26 weeks, which would have been when I was admitted to Hospital

    He is now 32 with a son of his own.

    The reason for all the problems was Hughes syndrome (Sticky blood) or Antiphospholipid syndrome all the same condition,

    Thank God for my DVT my life wouldn't have been the same without it.

    Just going to do questionnaire now.

    It's worth looking up the Hughes we'd site on here as it may have some answers to some questions

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