At what age were you diagnosed with Behcet's Syndrome? - ABDA
At what age were you diagnosed with Behcet's Syndrome?
hi mirta i started displaying symptoms when i was 19 but was not diagnosed until my late 20s i hope this is of help.
regards
pearce
Thanks, Pearce! I hope you're feeling well these days. The ABDA has been asked by several patients what the median age of a diagnosis of Behcet's is in the United States. We know signs and symptoms seem to occur in the early 20's, but it will be interesting to receive more information. We have patients as young as age 4. 
Hopefully, new research will lead to better treatments and earlier diagnosis.
Thanks again!
Best regards,
Mirta
I've displayed symptoms since early childhood, and I believe my first full blown flare was when I was 17, but I wasn't diagnosed until I was in my late 30s, unfortunately.
Thank you for your response, Steffie. Your input is greatly appreciated! Feel well!
Hi,
My official dx came at age 33, with me being unofficially treated for it for about a year prior to that. Looking back, my symptoms started when I was 28-29 but were so minimal I didn't realize something was wrong and thought they were from something else.
I just joined this site, so I'm looking through old questions and posts and all... my twin sister and I were diagnosed in 6th grade with Behcets, and our older sister was diagnosed a little later... I think when she was in high school.
My first flare was when I was 2yrs old.... Diagnosed when I was 34. (((Hug)))
I was diagnosed at age 46 yrs. old after many, many years of searching for a diagnosis. Looking back I know I have had Behcet's since I was 8 years old. So happy to join another great group today!
I'm 42 and just received a probable Behcet's diagnosis yesterday. Prior to Christmas Day, I'd never had anything like this, but managed to wind up with the hallmark symptoms except for vision problems since then (huge mouth/genital ulcers and EN along with arthritic pain in my feet). Apparently, the list of things that cause this chaos is pretty short which is why he's fairly certain it's what I have. I spent most of January either in bed, in the ER getting fluids or begging for help in my primary's office. They kept telling me it was a virus that needed to run its course and showered me with painkillers so I could swallow water. Then I was sent to an infectious disease doctor who tested me for what seemed like every virus/bug there's a test for and came up with nothing. Eventually, the ulcers started to heal and he shrugged his shoulders and told me to call him if I started to get worse again or if the EN continued. Well, not only did it continue, but I also developed a quarter sized pimple-like thing on my face (that I thought was EN at first) and then woke up with pain and swelling in my feet so I called. He immediately sent me to a rheumatologist for a consult and I walked out of the clinic with a prescription for colchicine and instructions to research Behcet's so I can bombard him with questions at my 6 week follow-up.
Not sure if I should be thankful I ran into a couple doctors who recognized the combination of symptoms or be skeptical since I haven't had more than one episode. All I know right now is that my feet are killing me, I'm pretty much freaked out and that this has been the most miserable/painful month of my life (I'd rather break my leg again)! Honestly, I think I'm in shock at being told I probably have a rare disease...
