Does anyone have Heart Problems as a result of Behcet's?

[Meagan]

Does anyone have Heart Problems as a result of Behcet's?

[KenzieCamille]

I developed Tachycardia, Chest Pain, Shortness of Breath, & Orthostatic Intolerance.

Common heart problems in Behcet's patients are: Mitral Valve Prolapse, Pericarditis, Heart Attack, Asymmetrical Sepal Hypertrophy, a Left Ventricular Aneurysm, Abnormal Heart Rhythms, and Silent Myocardial Ischemia. Orthostatic Intolerance is also common.

[Meagan in reply to KenzieCamille]

Thanks for the reply! I have had heart issues pretty much my whole life but nothing super serious but the older I get the worse the issues are getting. I have only had one outbreak of Behcet's it was the first and only one when I was 15 years old, I will be 30 on Sunday. I did read somewhere that even if you dont have external outbreak symptoms this disease can still be affecting you internally such as the heart. Do you know anything about this?

[KenzieCamille in reply to Meagan]

Yeah it's possible. The best thing to do would be to ask either your Rheumatologist or Cardiologist. Do they know a lot about Behcet's? A lot of doctors don't because it's so rare.

[Meagan in reply to KenzieCamille]

The dr that diagnosed me at 15 has long since retired and I havent even discussed it with any other dr's that I have. I have a General practitioner and they only specilists I see are a Cardiologist and an Orthopedic Surgeon

[KenzieCamille in reply to Meagan]

Okay, well ask your Cardiologist. And try to find a Rheumatologist. They're the ones that usually oversee your Behcet's.

[Meagan in reply to KenzieCamille]

Yes, I will have my GP refer me to a Rheumatologist, thank you!

[Andrea58]

I have had pericariditis, mitral valve prolapse, and heart attack. Wherever I have a flair my heart is affected. I usually have too low of blood pressure and occasionally high blood pressure during a flair which usually put me in the hospital. The flairs are hard on my heart.

[beralu in reply to Andrea58]

mine also my blood pressure runs low when the flares are bad .If i have to have surgery i cant be put to sleep because of my heart and lungs.Its hard on my lungs and heart and still dealing with the gastro.

[beralu]

yes,heart attack the ac valve completly colasped.i was at the time 45 yrs old.since then other organs are know involved. especialy the gastro.