Well, the Urso hasn’t worked like before, so my doctor has added Ocaliva to my list of medication. I started taking it once a day and had the itching side effect. So, instead of wanting to literally peel off the first layer of skin, I wanted to go deeper. It’s crazy, I know...so when I told my doctor that, he put me on Ocaliva (5ml) once a week. The itching has decreased (I would rather have it go away) and we will see what he says about my blood work that I have to get done on 7/21...God Bless!
Update:: Well, the Urso hasn’t worked... - PBCers Organization
Update:
Written by
Pamela372
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Hi Pamela, I've had PBC and Autoimmune Hepatitis for almost 8 years now. I know all too well about the itching. My doctor prescribed Cholestyramine for the itching which really helps. I also take Ocaliva, Ursidol, and Azathioprine. My ALT/AST have been stable which is great. I hope your bloodwork came back positive.
Not what you're looking for?
You may also like...
TERRIBLE ITCHING TRIED ABOUT EVERY FTIG AND LOTIONS
ursodiol daily. I just want this continuing itching to go away if anyone has experienced this and...
Anyone with PBC tried Rifampin?
Has anyone with PBC been given Rifampin for sleep and itching? And if so, did it help?
Thanks for...
Mucus and sore throat
It’s been a week since being diagnosed with Stage 2 PBC. My doctor stopped the Ursodiol two days ago
itch and bilirubin, long covid
startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is...
Liver Antibody panel suggests PBC - I am feeling very scared
1/640).
I haven’t had a chance to speak to my doctor yet but from what I can tell this is quite a...