Hearing therapist/audiologist visit/Neuromod

[Ingrid-p]

Went to my hearing aid department yesterday and literally broke down (again) in front of my therapist. She reminded me that I’ve been like this before and always come through it.

My hearing test showed my hearing hasn’t deteriorated, which is a relief as I thought it had. She told me that I have to put my hearing aids in with the maskers on as soon as I wake up until I go to bed. My head is such a noisy place with the maskers on as well 😭 I think eventually the brain gets sick and tired of the continuous noise and gradually switches off. By that I mean you still hear it, but don’t if that makes sense?

I also asked her and the audiologist about the Neuromed device and she hadn’t heard of it, but she’s going to bring it up at the next tinnitus meeting she goes to. If she hasn’t heard of it I do find this very strange as it’s supposed to be launched here soon, but I guess we’ll have to wait and see.

Oh well looking forward to another day of buzzing 😭

[Angela-H]

Hi Ingrid,

Sorry you are still being bothered by your T, but it will get quieter again, as you know. Just to let you know I am thinking of you - your post almost got lost under the weight of all the others! - and wishing you a happy and peaceful new year. If only non-T sufferers knew how much we all hope for a PEACEFUL year!

It would seem that we are all becoming hopeful about this Neuromod device - I won't believe anything until it is approved by the BTA, who seem to be the only people who care about we tinnitus people. If only £200 million could be given by the NHS to tinnitus research - to match the amount spent on hip and knee replacements for the obese, about which I heard on Radio 4 this morning ............

Hope you are having a good day,

Love

Angela xx

[Ingrid-p in reply to Angela-H]

Hi Angela and a Happy New Year to you too.

It's so loud at the moment, but it's been like this before so hopefully it will settle. My hearing hasn't deteriorated so I guess my brain has gone into overdrive!

My hearing therapist hadn't heard of Neuromod either, but she's going to look into it for me and bring up the subject at her next meeting. Perhaps if Nic reads this she could let us know if she's heard anything.

Apparently there's lots of drug trials at the moment so fingers crossed.

£200 million that's a lot of money! Perhaps if all t sufferers worldwide donated £1 then perhaps research would be more enticing.

Take care and hopefully peaceful days will be here soon xx

[Angela-H in reply to Ingrid-p]

Thanks Ingrid. I forgot to say that I put in my hearing aid as soon as possible in the morning as my T is more loud as I wake up. I have a masker too for my good ear which I use only on bad days. Yes I can still hear the hissing as well as the masking sound, but I do think that eventually the masker tricks my brain into ignoring the tinnitus. I also have my radio on when at home, not loud as I want my ears to work hard to listen, hopefully pushing tinnitus away.

Love

Angela xx

[Shellipops in reply to Ingrid-p]

Donate a pound, help mute our sound....seriously you could be onto something there x

[Ingrid-p in reply to Shellipops]

That’s a good slogan 😁 we just need someone to implement it now xx

[Angela-H in reply to Ingrid-p]

Such a good slogan - hope Nic is reading our posts!!!!!!

xx

[Ingrid-p in reply to Angela-H]

Me too, just about had enough of this now. I’d really like to know what research is being done. I hope Nic is reading this as well xx

[Kathryn49 in reply to Ingrid-p]

You can buy an Annual Research Review from BTA for a couple of pounds. It was very interesting to read.

[Ruud1boy in reply to Kathryn49]

No need to buy it, it's available gratis on their website.

I'm a bit late onto this thread, but I've not seen it before. I agree, if T sufferers banded together and chipped in a pound apiece, there'd be a hefty chunk available for funding research. There are a couple of problems with this though - drug research costs a lot of money - as in billions when you're getting to the big pharma companies. Secondly, most people who have tinnitus aren't that bothered by it - and even those that are bothered, are in the main pretty apathetic.

There was a fundraising drive recently on TT, in memory of a lad who'd died / killed himself (I'm not sure). There are 27,000 members on that forum and they raised about £5k. Enough people just aren't bothered enough to do anything about it.

Consider the numbers - T affects c.10-15% of the population and c.1% are seriously affected, so that's about 600,000 people in the UK who struggle to cope with this nightmare and yet there are less than 3000 members on this forum. The TT forum is much bigger, with users worldwide, but even they've only got c.27k members.

The smallish commuter town where I live has c.20,000 residents, so that should mean there are about 200 people living in my hometown who have problem, intrusive, debilitating T. Where are they all??

The support group I go to, which is the only group covering a massive conurbation including Leeds, Wakefield, Bradford etc, usually attracts less than 10 people. I don't understand it.

Sorry for the long post, I got on a roll there....