Help: Hi I have joined this group today having... - Tinnitus UK

Tinnitus UK

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xuanlong profile image
18 Replies

Hi

I have joined this group today having been suffering from tinnitus for many years the last few days the whining and whistling I am experiencing has increased considerably.

I have been to the Drs today they havesaid my ears are clear no wax or infection I feel very deaf.

I have looked online at some patches if anyone has heard of these they are very expensive 69 pound just wondering if anyone has tried these?

The Dr did say my tubes might be blocked to go back in a few weeks if no better.

If anyone has any ideas to help me please thanku

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xuanlong profile image
xuanlong
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18 Replies
darren25 profile image
darren25

ive never tried the patches but ive heard they dont work. Dont go spending loads on miracle cures because generally they dont work

HissingSid profile image
HissingSid in reply to darren25

I also have never tried patches and I agree with darren25 not to needlessly spend money on “miracle” cures for tinnitus. I’m waiting on an audiology appointment in my local hospital rather than going to Specsavers or other private firms as I refuse to spend £495.00 on hearing aids and batteries when I can get these free on NHS. I’ve been told that the newer hearing aids with masking helps to relieve the noises so that is what I’m hoping for once I see my local audiologist.

sammie888 profile image
sammie888 in reply to HissingSid

Hi Sid you are exactly right get your hearing aids from NHS i recently went back to my doctor to ask if i could exchange my old aid for a more up to date one as technology moves so quickly, no problem i now have a new aid with built in Tinnitus "Q" which is a white noise that can be turned on or off as required, a great piece of kit.

All the best Sammie.

HissingSid profile image
HissingSid in reply to sammie888

Yes sammie888 I may have to wait for another 5 or 6 weeks before I get appointment with audiologist but it’ll be worth it if I move on and get 2 hearing aids with masking in place of one without masking that I have now.

jbradford42 profile image
jbradford42 in reply to sammie888

Hi are you saying that you got the new herring aids with T built in as I’ve had mine for about 2 months. They never mention anything about that at the hospital. I’ve tried the new ones privately but they were £2500 they were great but I couldn’t afford them.

Ingrid-p profile image
Ingrid-p in reply to jbradford42

I've got 2 aids with white noise built in on the NHS. They do help to a certain extent.

sammie888 profile image
sammie888 in reply to jbradford42

Hi jbradford sorry about delay in answering your question but yes I spoke to my G.P. about new aids and would it be possible to have them with inbuilt white noise yes it is possible was the answer and now I have aids with Tinnitus "q" built in which can be turned on and off I don't know what area you are in but that might have some baring on availability, hope this helps.

All the best Sammie.

jbradford42 profile image
jbradford42 in reply to sammie888

Cheers Sammie. Yes you’re right about different areas I’ve seen doctors and had about three visits to the royal Bolton H pretty pointless really sad though my T is really bad looking Its here for good thanks il still ask though

Highwycombe profile image
Highwycombe

Mine are the same if you have had it for years your I don't think your tubes will be blocked do you have do you have a blocked feeling vertgp

xuanlong profile image
xuanlong in reply to Highwycombe

Yes I have a blocked feeling as wel

Ruud1boy profile image
Ruud1boy

Never heard of these patches before, but I wouldn't hold your breath. The blurb on the website talks about 'redirecting fractal light to reorganise water molecules' which sounds like bad science gobbledygook. Also, even if they did work (unlikely, as noted by the company selling them to be fair), I would imagine it would be temporary effect, so you'd have to continually replace the patch on a daily basis - at a cost of c.£1200 per year.

If anyone does fancy spending a bit to try these patches out, please do let us all know how you get on!!

aegeandon profile image
aegeandon in reply to Ruud1boy

My tinnitus varies from ear to ear and also in strength...and I have been experimenting with 'Lidocaine' (Google it) patches and drops. I buy them in Greece (I live in Turkey) and while a box of 20 patches is~$60 they are each 12x16cm and I cut each one into ~a dozen smaller ones. Then I take a nap and put one patch just below whichever ear is bothering me and also take Lidocaine drops in the same ear AND nap on the other ear. I can only says sometimes it really seems to help...enough so that I keep trying!

Freddy17 profile image
Freddy17

Haven't heard of those patches but I tried everything on the market nothing seems to work.

Ruud1boy profile image
Ruud1boy

Lidocaine is one thing that does stop T in its tracks, for a brief period at least & only if administered intravenously. The medical profession don't know how or why it works however - useless feckers.

Ingrid-p profile image
Ingrid-p in reply to Ruud1boy

It's about time they did! I'm guessing there's not much money put into research. It's such a distressing thing I hate it 😠 Cancer charities seem to get most of the publicity and money, I've got breast cancer and my treatment has been successful so far due to advances made. Just wish research into tinnitus was the same. When my uncle died he left money for research he suffered from the age of 16 to 81. There must be a cure out there somewhere?

Ruud1boy profile image
Ruud1boy in reply to Ingrid-p

Cancer kills - no-one dies of tinnitus, so it's never going to get the same attention. I dread to think however about the poor souls who end up taking their own life due to tinnitus - there but for the grace of God............

Ingrid-p profile image
Ingrid-p in reply to Ruud1boy

Medical advancements in cancer research have improved so much, I know as I’m going through breast cancer treatment now. I never see anything on tv or in magazines about people suffering with tinnitus. A few years ago I did a local radio interview and also appeared in a newspaper. I work in a supermarket and after the interviews was amazed by how many people who knew me said they had tinnitus too. I just wish more people could be made aware of how we suffer each day. It’s a pain at first but I know the brain does get used to it after a while. 35 years on and 5 really bad spells I always come out the other side. Normally takes me about 6 months to get back to hearing it and not caring anymore 🙂

NicBTA profile image
NicBTAPartner

Hello and welcome to the British Tinnitus Association forum. Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

The tinnitus patches do not work - please don't waste your money on them.

We have some resources that you might like to check out in addition to our home here, which will take you through some of the things known to help people with tinnitus:

tinnitus.org.uk

takeontinnitus.co.uk

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call +44 (0)114 250 9922)

Warmest wishes

Nic (BTA Communications Manager and Forum Administrator)

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