JUST BACK FROM FIRST E.N.T

[Michael8272]

Hi,just back from first e.n.t appointment. Got hearing test and pressure test done.then got called to see consultant he said hearing test and pressure test are normal with no hearing loss.i suppose that's something.i said about hyperacusis he didn't really no much about this.he just said he will book me for mri scan to rule out any nerve damage.he said the tinnitus will settle due time as I had alot of wax taken out a few weeks ago.he said my ears will be sensitive due to wax been taken out and me wearing ear plugs to bed for so long.i have to use olive oil in the ears for next few weeks as there is still some wax in the left ear and alot of dry skin in the right.i really am no further forward than when I went in,only thing I do know is hearing is perfect.i went to the beach on Sunday night and right ear has been going mad since due to wind.is there any hearing test for hyperacusis?

[Ingrid-p]

Hi Michael glad you've been seen. An MRI scan will hopefully show no damage. You can only do what they say, but it does sound positive. I know nothing about hyperacusis tho. Perhaps ask again next time you go.

Take care xx

[Michael8272 in reply to Ingrid-p]

It's just a pity there was no magic wond.went for a walk on the beach on Sunday and it was windy,good ear has this real loud noise since.hopefully only temporary.

[Frogman1]

Hi Michael.

The scan is to rule out any possible tumour. I also had the scan done only to find a benign brain tumour which ended up to be something I may have had since childhood since it wasn’t growing any more.

My T has been measured at 100db when it’s at an average level. When it spikes it’s quite a bit worse. Thank goodness I just accept it as a lovely background noise like traffic or crickets in a field.

If you bought your dream home and later realized there was a constant cricket sound or ringing in the neighborhood you wouldn’t move would you? Make the most of what you’ve got. Enjoy life and don’t let minor things like this annoy you and you’ll see that by accepting it, it won’t bother you as much.

There are so many worst things that could happen to that we should consider ourselves blessed with something that really is minor in comparison.

Enjoy life to the max!

Roger

[Ruud1boy in reply to Frogman1]

What procedure or test was done to peg your T at a particular volume? By definition, there isn't any noise to measure so I've always been curious when people say my T is (this)db loud.

[Frogman1 in reply to Ruud1boy]

I had the T measured at Specsavers. When they were testing my hearing they played a tune close to the pitch of my T, in headphones and asked me when the volume from the headphones matched the noise in my head.

I don’t know how accurate that was but I think it’s a good indication.

Roger

[Trish_ross in reply to Frogman1]

Hi Roger, I had a scan last month to find out why I had suddenly gone deaf and horrendous tinnitus I too was diagnosed with a brain tumour (acoustic neuroma) ìm now waiting to find out where it is and if its growing. Its causing bad balance problems and headaches and blurry vision. Is yours growing, what has been suggested about treatment options for you?

Trish

[Frogman1 in reply to Trish_ross]

Hi Trish,

I’m sorry to hear about your news.

What I have is a meningioma which is a benign tumour on the sac around the brain. They found it 15 years ago when I first started with T. It’s been monitored and it hasn’t grown since. It’s about the size of a small grape. It shouldn’t be affecting me in any way so I just ignore it. They’ll keep scanning every 5 years now just to make sure it’s not growing. They say I could have had it since I was a small child. I’m now in my late 50s so I don’t think it’ll ever cause me any problems.

Regarding my T it bloody loud, excuse my French, but worrying or getting anxious about it only makes it worst so best to enjoy like and keep busy with things you like to do.

My biggest problem is in crowds or restaurants I can’t concentrate on the person speaking to me since I hear everyone just as loud. Even the people at the other end of the restaurant.

How about you? How are you coping?

Roger

[Hidden in reply to Frogman1]

You know the irony of reading the comments so far to this point.....my tinnitus has just rocketed to fever pitch!

I'm increasingly wondering if being conscious of it exacerbates it.

[Michael8272]

Hi Roger,

Thanks for reply.hopefully I will settle a bit,still early days and full of panic.you say you had a tumour, did you get that removed or does doctors just monitor it.your right I will just have to accept it.have a counselling session booked for Tuesday just to see if it will help with anxiety and stress.

Thanks Michael

[Jojo313]

Seems the same big standard routine we’ve all had! I’m 19 months in now and after various things ticked off the lists ent are no longer seeing me, I used to go to my appointments full of hope but soon realised there isn’t any! In my case I’ve just been left to put up with it and spectacularly let down by these so called professionals!

[Michael8272 in reply to Jojo313]

Hi jojo313,

Yes it's seems same procedure.doctor said to me yesterday I will get a scan and he said he will write to me with results and if it's a tumour he will call me back,if it's not he will no longer see me.he didn't know much at all about hyperacusis. So it looks like a private clinic for treatment for hyperacusis.if I even got that sorted I would be happy because it is a disaster

[Jojo313 in reply to Michael8272]

At least they treat us all the same! What we need is for one of them to get it, each ent doctor I saw had a different label for me and prescription to go with it, first Labyrinthitis then Ménière’s then Vestibular migraine, finally MdDS and in all of this only ONE looked in my ears! They are also the same ones I’d have seen if I’d gone privately! Good luck on your journey keep us informed, one day I’m sure someone will have good news!

[Michael8272 in reply to Jojo313]

Hi jojo313,

Your right they do treat us all the same.well he did look in the ear and said I have a little bit of wax in one and dry skin in the other.he just said put olive oil in.😤

[NicBTA Partner]

Hello and welcome to the British Tinnitus Association forum. Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk

- especially this page tinnitus.org.uk/hyperacusis

takeontinnitus.co.uk

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone])

Warmest wishes

Nic (BTA Communications Manager and Forum Administrator)

[Michael8272 in reply to NicBTA]

Hi,do you know if there is any treatment available for hyperacusis in n.ireland? I've been looking but can't seem to find anything

[NicBTA Partner]

Hi Michael - if you give our helpline a ring on 0800 018 0527 they can tell you more about your local hospital services, or drop them an email on [e-mail]

Best wishes

Nic