I've seen many stories on here about tinnitus and the fact that it never goes or they learn to live with it. Has anybody had experiences of it going? As I would like to read positive stories, had tinnitus for nearly 3 months now and it's not something I could live with.
Hi Kayley12345,
"it's not something I could live with."
I'd imagine that most/many of us on here thought that during the early days, I certainly did. Yet here I am almost 17 years later and I'm still living with it. Sure, I wish it would stop or get quieter, but that's probably unlikely now so ...........
As for it going away, I guess that it does for some people but I'd guess that they probably wouldn't be posting on T forums so you're not going to read too many stories about it.
Anyway, best wishes
Kenny
The doctor has looked into my ears and he said the can see its Eustachian tube dysfunction and and the nosies should stop as soon as the problem goes away, I've started to think It won't, I'm only 21, it drives me insane.
Check the meds your takingg could be a side effect,,,it was for me
hi Kayley
Most people do find their tinnitus improves over time. We do have a number of positive stories on our website tinnitus.org.uk and in our magazine Quiet - which I would be happy to send you some copies of.
Warmest wishes
Nic (BTA Communications Manager and Forum Administrator)
Hi Nic I'm one of those people who have improved over time as you know and i was very grateful for the support i got and still get from the BTA .thank you David
Mines getting worse!! They still havent a clue how mine started and why my ear felt blocked as no signs of infection. Coming upto 4 years now and mine gets louder and louder.....i wish reading a book would help
Hi my earfeels like there is pressure in it , doctors have looked but can't see any reason. The lady at chime clinic used a gadget which reads pressure in yr ear. She said I had pressure in my ear probably caused by blocked Eustatian tubes. So at its worse steaming twice a day may help.
How long have you had blocked Eustatian tubes? As my doctor said that's why I've got and that the tinitius would clear when it goes.
Have they said anything about yourEustatian tubes being blocked or anything, or fluid in the ear? That's what a doctor has said mine is and the tinnitus should go when that problem goes. I hope he's right.
Have they said anything about yourEustatian tubes being blocked or anything, or fluid in the ear? That's what a doctor has said mine is and the tinnitus should go when that problem goes. I hope he's right.
I have had tinnitus for years, sometimes its not too bad and sometimes I feel like ripping my head off. I think you will have to learn to live with it, you just need to manage it, try hearing aids, they can sometimes help by bring other sounds in more clearly.
Hi, sorry you've got for many years, I feel like hearing aid wouldn't useful in my case because my hearing is fine and clear, I don't have any hearing loss, just with the tinnitus and ear pain. Doctors say it's because i have Eustatian tubes dysfunction, he said it will go in time. So I'm hoping hes right.
hi suew395 your right the aids are meant to distract your brain and let you hear other things clearer, ive had aids for 4 1/2 years now but my T. is still LOUD but they do help a little!!
Thank you for the replies everyone, I also find that being out in cold/windy weather makes my ears worse at times
I also hope it doesn't come to wearing hearing aids, I'm only 21 and I don't want it to come to that .
Hearing aids these days are very discreet and surely if it comes to it, it would be better to try/wear them if it helps no matter what your age!
I've already spoken to Specsavers to get my appointment for hearing test and they've said it's more of a doctors matter at the moment because of the fluid in my ears rather then to test for hearing loss. So ill just have to see if the doctor can help
Wear a hat when outside in windy and cold conditions I find it makes my ears worse as well, I know how you feel I have been suffering since August and still no clear reason for it, had hearing tests etc which were all ok they said maybe slight loss and suggested hearing aids which I thought ridiculous age 40!
Hang on in there x
I was initially very resistant to the notion of wearing HA's unless I absolutely had to. I thought my hearing was OK, despite the high frequency impairment identified by the tests. However, my T was becoming simply unbearable, to the point that I was considering doing something daft.
Virtually all tinnitus treatment / therapy programs advise that correcting any hearing impairment will usually be beneficial in terms of managing the T, so I figured if I did start seeking help privately (which I'm hoping to do over the next few weeks! Be still, my beating heart!), the first thing they would suggest would be wearing HA's. As such, I bit the bullet and starting wearing my little fellas. I'm 'only' 44 and there is a general perception that HA's are only for old people, but you soon realise that's nonsense. Very few people have hang-ups about wearing seeing aids, so why should hearing aids be any different? My eyes don't work properly so I wear glasses, my ears don't work properly so I wear HA's.
The audiology profession will tell you that there needs to be a shift in public perception about HA's. Apparently only a relatively small %age of people (c.20%) who would benefit from HA's actually wear them. My first pair were 'hearing aid beige', ostensibly to blend with skin tone, but I didn't want to be embarrassed about wearing them and try to hide the fact, so I went back and asked to swap them for some black ones - if I'm was going to wear them, I wanted to be ''yes, I wear HA's - aren't they cool?''. I got them via the NHS and they didn't swap them, they just gave me a new pair. Then I got another new pair a few weeks ago, so that's 3 pairs I've had in 6mths, along with all the batteries, on the health service. It has many faults, but you can't argue with their provision re HA's in my experience.
Basically if you have T and an aidable hearing impairment, you need to wear HA's. Not doing so could leave you straining to hear, possibly without realising it, which can in turn lead to your T getting worse. Believe me, you do not want to go there.
I do experience very quiet days every so often. You need to distract yourself with music or other sounds, just not so loud as to cause any further damage.
Think of it this way, if you can do everything you did before it started then it's a real pest but it's not something which should be allowed to affect your life.
Hi Hayley I have had exactly the same as you have had Tinnitus for 3mths now and it made me anxious at first because the ringing drove me nuts but I have learnt to live with it and not get myself stressed. I have been getting quite days where I can just hear a slight ringing so I think yours will be the same..
Thank you for your reply, I hope mine does go, my doctor says it will go in time, she said she can see into my ears and she see fluid in them, so maybe it will go when the fluid goes.
I have been using a steam inhaler that's been a great help ... You will get better..
Thank you, I have a brain scan in two weeks time so hopefully everything will be fine
Good luck Kayley you will be fine..
Hi Kayley. Ive had it for a year. Mine possibly resulted from overuse of ear protection. I find that mine flares up with stress. Im particulalry stressed at the moment and it is really bad hence being in this forum. Avoiding rooms where it is completley silent and learning to relax has been quite helpful. Try yoga or reflexology. Ive been back and forward to my GP. I dont think its a case of "it never goes, but it is a very personal and individual experience for everyone. Im sure once you address the fluid in your ear, the rest will be overcome in the mind. Good luck. I too would love to read some positive outcomes.
Best wishes
Mark
Hi Mark, thank you for reply, hopefully it will go in time, it's such a stressful thing to have, thanks for the advise
I have started to get quiet days. I sit and listen to silence in amazement. It’s something you just learn to live with and it does not stop you living life to the full
Thanks for the reply, but I'm going to try and get to the bottom of mine, as I think there's a underlying cause that's started my tinnitus, the doctor says there's fluid in my ears, so hopefully it will go
Hi Kayley yes my tinnitus completely disappeared after it had been going all day as I went to bed and laid down I listen for it but all I heard was pure silence I have had tinnitus for some 5 plus years and my early years were a living hell but I have read as time goes on it can decrease for some I am somewhat lucky I only have mild tinnitus it only get loud if I have ear wax or a ear infection which sends it way up high I can honestly say it has not stood in the way of still enjoying life and as I was told once your brain has learnt to reduce your tinnitus it will do again and has so it can happen .
Hi, I'm pleased to here that, it's nice to here hopeful stories. I'm hoping that my ears will go back to normal soon
Hi Kayley, I woke up with T in July 2016. I believe it was caused by stress and medication during an operation. The noise has changed over time and is often not there at all. I exercise, make sure I eat healthily and take vitamins. Also make sure you have correct blood pressure as that can cause T. It can improve. Good luck
Hi Kaley,
I have had the dreaded "T" for just over 5 years now. It just came on one day whilst standing in the kitchen and it has never left. It is getting worse all the time and to be honest I could easily let it push me over the edge. I have a stressful job and plenty mortgage left to pay. I don`t sleep much and the only thing that shuts it up for a short time is drinking. Not great.
However, you can only beat "T" by remaining strong and positive, It feeds on anxiety and anger. Try to concentrate on the good things in life and be blessed that so far if this is the worst that will happen to you then things are not that bad. It is awful but not life threatening.
Keep smiling and use masking sound as much as possible. Good luck. One day there may be a cure.
Completely understand where you are coming from, as in the beginning of realizing I had tinnitus, I thought the exact same thing to myself. It's an incredibly frustrating ailment to experience, and not only is it frustrating, but it is confusing. The fact that there is no cure can seem daunting, but you have to be open to trying various options for "treatment." This can include supplements, dietary changes, incorporating sound machines, etc. I basically told myself in the beginning to try anything and everything anyone suggested, because since it varies so much from person to person, who knows what will work best for you until you try? My ENT suggested LipoFlavonoid and I read mixed reviews on it, but gave it a try because of the 60 Day Money Back Guarantee. It's a 60 day challenge in which if you don't see improvement in your symptoms, you'll be refunded what you spent on the product. I didn't notice improvement in the beginning but eventually after 2 months I definitely noticed improvement. I've also tried dietary changes, like altering my salt and zinc intake, didn't see any results from that though. But since starting Lipo and utilizing a sound machine at night to help me sleep, I've been able to live more comfortably with tinnitus. I would highly suggest remaining open to all options, try to stay positive! There is hope
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