Pulsatile tinnitus

[Boss1]

Hi, I'm new here. I suffer from pulsatile tinnitus. Started Feb 2016, getting worse all the time. Invesitigating many but wondered if anyone on this forum has this? Just about possible to keep working but nearly giving up. Frightening as no one has answers.

V

[Lynne-H]

Hi I have had pulsatile tinnitus since October 2014 caused by losing 40-50% of my hearing following a virus. I was told that the sound I was picking up was from the carotid artery which runs very close to the hearing nerve. I had an MRI scan on my ears and a doppler scan on my neck to check the arteries in my neck - both results came back clear. I believe there can be a number of causes for pulsatile tinnitus - the BTA do a good leaflet on this kind of tinnitus which may be of help to you.

In November 2015 I was prescribed a beta-blocker for the anxiety and panic attacks I was experiencing, and as well as calming me down they had the added benefit of slowing down my heart rate which then lessened the noise.

I have other noises which are helped by my wearing hearing aids.

Hope this helps. Lynne

[Boss1 in reply to Lynne-H]

Hi Lynne,

Thanks s much for your reply. Mine started with a virus but my hearing hasn't been affected. I have had a CT scan with imaging dye to rule out any thrombotic issue as I have another a blood disorder. The blood disorder is much more serious as far as the medical profession are concerned but it is the pulsatile tinnitus which is affecting my quality of life! I will look at the BTA leaflet. Think it might be time to take up meditation! Best wishes V

[Lynne-H in reply to Boss1]

If it makes you feel any better things did get better for me. Other things that helped as well as the medication and hearing aids were that I had tinnitus counselling, I joined and still go to a local support group every week and I read lots of success stories. I also became a member of the BTA.

Don`t feel on your own with this - everyone on here knows exactly how you`re feeling right now.

Lynne

[ade-the-pade]

Hello from Ade. A lot of us in cyber land are on the tinnitus journey. Some a lot longer than others. We all have tales of anxiety, depression insomnia and if despair. However, most have made progress. We feel at times that this is impossible to live with but we get there on the end.

The first six months seem to be the worst. Hang on there and remember that you are not alone.

Things will improve and you will get the better of this. Take advice from the professionala and support from people who care. Try to read the success stories and believe that you can be one of them

If you feel really low then give the Samaritans a call. You don't have to be suicidal. Maybe just for someone to listen to your story

Also, just post a message hear and you wil get to tell a lot of people who care and understand your pain.

Good luck on your journey.

Ade

[Angela-H]

Hi Boss1, I can't add any more to the wise words of Lynne and Ade. The BTA and its forum folk are what got me through my darkest days ....... only other sufferers can know.

My T has changed over the 2+ years and it is now mainly in time with my pulse, when I hear it, though not in tune with my heartbeat. I have days when it is so quiet I don't hear it - other times it really bothers me.

We're in this together, keep positive. It will settle and your life will get back to normal. Love, Angela xx

[Boss1]

Thanks Angela. I must say that it certainly increases with stress so it is a good barometer! I know how to slow my heart beat down, just by breathing and mindfulness...! Vanessa

[Angela-H]

Indeed Vanessa. Stress is our enemy. Nice to read that you are controlling it with mindfulness. Onwards and upwards. Love, Angela xx

[hac82]

I have pulsatile tinnitus I've had it for 9 years. Many tests done no answers!!

[Highwycombe]

My tinnitus has never gone away its just got worse .