Living in hope: Folks, I have had T for about 1... - Tinnitus UK

Tinnitus UK

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Living in hope

ade-the-pade profile image
16 Replies

Folks,

I have had T for about 14 months. It has caused the usual problems of mental health, depression and "anger".

Last month I woke up to silence. I didn't dare think that it was gone for good. I went downstairs and sat in my kitchen. I had my normal breakfast of cereal and a cup of tea (decaf). I opened the door to the garden and listened to the birds. It was bliss bordering on magical. No whistling, ringing or screeching. This lasted for about 20 mins and then it came back with its usually vengeance. However, it made me think. My ears can work just fine. Nothing is actually broken. Someday it may stop again and I can enjoy what others take for granted.

Has anyone else been given these short reprieves?

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ade-the-pade profile image
ade-the-pade
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16 Replies
LuverlyLucie profile image
LuverlyLucie

Hi Adeosoba. I usually get one day a week when it's low or non existent sometimes more. Right now it's pretty bad so I'm looking for a dark hole to crawl in to. Luverly Luciex

ade-the-pade profile image
ade-the-pade in reply to LuverlyLucie

Hope that it settles soon and that tomorrow is a better day.

LuverlyLucie profile image
LuverlyLucie in reply to ade-the-pade

Thanks, adeosoba. It's actually been pretty low level today. 😊 I have no idea why one day varies so much from the next. LLx

NicBTA profile image
NicBTAPartner

It's the start of habituation - which is great! It's a bit like learning to right a bike - uncertain at first, doesn't happen for very long, and you might get frustrated. However, gradually the time you aren't aware of your tinnitus will get longer and be more frequent.

Best wishes

Nic

ade-the-pade profile image
ade-the-pade in reply to NicBTA

Thanks Nic.

Angela-H profile image
Angela-H

Yes adeosoba, I do have those times. They become more frequent and thankfully I can go for a few days of not hearing my T, other than when I wake up in the morning. My hearing aid and masker I believe help to push it to the back of my brain, or whatever the technical term is! Angela xx

ade-the-pade profile image
ade-the-pade in reply to Angela-H

Thanks Angela.

I don't hear it when I go for it during a Body attack session at the Gym. I lost a stone and this is the fittest that I have been in ages!!

Tinnitus can come and go and change sound and strength and ear and in your head and multi tones and it can stay.

These small pleasures of quiet time are lovely but reminds us of what we are missing.

Tinnitus for most people becomes a sound that you don't notice like traffic or a ticking clock and for some people they need extra help.

I hope you get a lot more quiet times and try not search for your sound to see if it's still there as it could well bring your sound back and be conscious about it again.

Stay positive...Love glynis

ade-the-pade profile image
ade-the-pade in reply to

Thanks Glynis. This clearly is a journey. I'll keep you posted.

Ade

GDJTAM profile image
GDJTAM

I concur with Glynis, For the first time on Saturday I stopped everything and dug deep in my as my T was very distance, borderline gone. Fantastic I thought but soon realised by searching for it only made it return with interest...Never again will I go searching for it. Let's hope you get more good days than bad ones's from now on.

Fingers crossed for you

Graham

ade-the-pade profile image
ade-the-pade in reply to GDJTAM

Cheers Graham. The "20" minutes of bliss was the first one in 14months.

Thanks for you kind words.

Ade

Agree with all the guys!! The moment you wonder where it is...it appears. Enjoy the memorable moment of the silence and try to bin the wonder...... Not easy but tease it and not yourself!

Whacky

Lesley2065 profile image
Lesley2065

Hi I have had T for 22 months now and i do have some days when its very low and therefore brings some relief but it varies from day to day and you never quite know what each day will bring. I was given a hearing aid with built in masking but found it made me focus more on my T than not so only use it occassionally now, though Im wondering if i should have given it more of a chance and then maybe it would make a difference. I have noticed recently that if i sleep for more than 6 hours, then T tends to be worse the next day.

I have found that if i just carry on as normal with everyday life, then my T doesn't get the better of me. I even went to see Guns n Roses a few weeks ago and wore my ear plugs and it didn't affect my T in anyway. So you can do things if you are sensible. I do have days when sometimes the volume is annoying and i get fed up with it but for most of the time, i just try to put up with it and i know that i will have a quieter day soon so it makes it easier to bear. We all have our own journeys to tell and sharing them is a valued way of releasing your frustrations etc and i have found the people on this forum very enlightning. Lesley

ade-the-pade profile image
ade-the-pade

Thanks

You sound very positive. That is good to hear.

I don't like to be a professional moaned but some days it is challenging.

Kind regards

Ade

Lesley2065 profile image
Lesley2065 in reply to ade-the-pade

I have found that being positive is the way forward, that attitude helped me 22 years ago when i found out i had cancer, and staying positive throughout my treatment helped me to deal with it and Im sure it helped me on the road to being cured. (Which I am) so i figure that being positive when trying to find a way to manage T is one of the best ways. Thats not to say that there arent times when it gets the better of me, because from time to time it does and i use all the tricks, like keeping busy, listening to nature sounds etc to get through it and knowing you can vent your frustrations on this site, means you feel less alone to coping with the spike.

Its great that you had a "silent moment" and hope you have many more...

The only time my brain totally switches off to T is when Im at work. I work as a theatre nurse and have to scrub for surgical procedures ( i dont do the operations but pass instruments etc to the surgeons) and i have to concentrate on what there doing and that seems to make the T disaapear. I wish it was like this all the time but think Id be totally knackered if i had to concentrate 24/7 but at least it proves my brain can ignore it. Just have to figure out a way of doing this when not at work !

Hope you continue to be positive...x

ade-the-pade profile image
ade-the-pade

Hello Lesley, Respect to you. Dealing with Cancer and T. You must be a really strong cookie.

Hope that life is done throwing you curved balls.

Wishing you more peace and quiet.

Ade

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